Standardizing Social Justice in Digital Health: An HDI-Informed Health Informatics Architecture

Mamello Thinyane
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Mamello Thinyane: United Nations University Institute in Macao, Macao

International Journal of Standardization Research (IJSR), 2020, vol. 18, issue 1, 24-43

Abstract: The bivalent nature of technology and its potential for adverse impacts are giving impetus to global efforts to ensure that the outcomes of technology are consistent with societal values and desired futures. Instruments such as legislation, standards, and ethical frameworks are being employed towards this end. This research investigates the domain of digital health, specifically health informatics, and asks the questions: What values should inform technical solutions in this domain? How can data justice, the infusing of social justice imperatives in data systems, be standardized in this domain? The paper presents findings from a review of data justice in health informatics supported by findings from a survey that explored key considerations for health data collection, processing, use, sharing, and exchange. The paper then presents the operationalization of the human data interaction framework through a health informatics system architecture to illustrate how the principles of legibility, agency, and negotiability can be standardized, mainstreamed, and embedded in health informatics.

Date: 2020
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Persistent link: https://EconPapers.repec.org/RePEc:igg:jsr000:v:18:y:2020:i:1:p:24-43

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