An Innovative Lab-Based Training Program to Help Patient Groups Understand Their Disease and the Research Process

Marion Mathieu, Constance Hammond and David G Karlin

PLOS Biology, 2015, vol. 13, issue 2, 1-11

Abstract: Genuine partnership between patient groups and medical experts is important but challenging. Our training program meets this challenge by organizing hands-on, lab-based training sessions for members of patient groups. These sessions allow “trainees” to better understand their disease and the biomedical research process, and strengthen links between patients and local researchers. Over the past decade, we and our partner institutes have received more than 900 French patients, with the participation of over 60 researchers and clinicians.Lab-based mini-research projects allow members of patient groups to understand the scientific method and how research works in practice, thereby fostering genuine partnership between patient groups and medical experts.

Date: 2015
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Persistent link: https://EconPapers.repec.org/RePEc:plo:pbio00:1002067

DOI: 10.1371/journal.pbio.1002067

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