Parental Experiences: Care of Children With High and Intermediate Imperforate Anus

Maria Öjmyr-Joelsson, Margret Nisell, Björn Frenckner, Per-Anders Rydelius and Kyllike Christensson
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Maria Öjmyr-Joelsson: Astrid Lindgren Children’s Hospital, Department of Woman and Child Health, Karolinska Institutet, Stockholm, Sweden, Division of Pediatric Surgery
Margret Nisell: Astrid Lindgren Children’s Hospital, Department of Woman and Child Health, Karolinska Institutet, Stockholm, Sweden, Child and Adolescent Psychiatric Unit
Björn Frenckner: Astrid Lindgren Children’s Hospital, Department of Woman and Child Health, Karolinska Institutet, Stockholm, Sweden, Division of Pediatric Surgery
Per-Anders Rydelius: Astrid Lindgren Children’s Hospital, Department of Woman and Child Health, Karolinska Institutet, Stockholm, Sweden, Child and Adolescent Psychiatric Unit
Kyllike Christensson: Astrid Lindgren Children’s Hospital, Department of Woman and Child Health, Karolinska Institutet, Stockholm, Sweden, Reproductive and Perinatal Health Care Department of Caring and Public Health Sciences, Mälardalens Högskola, Sweden

Clinical Nursing Research, 2006, vol. 15, issue 4, 290-305

Abstract: In this study parental experiences of care of children with high and intermediate imperforate anus were evaluated. A group of 45 parents of children with high and intermediate imperforate anus and two control groups participated. Data collection with individual questionnaires concerning the child's hospital care, information to the parent and the child, and involvement in the care of the child were performed. Parents of children with imperforate anus reported being less satisfied with the care of their child, and they were less content with information about their child's treatment compared with the control groups. The parents had been extremely involved in the follow-up treatment. Constipation and fecal incontinence are common and involve suffering for the children and their parents. Parents have to be motivated and supportive and have a great deal of patience to be able to put up with caring for these children, and it seems as if health care professionals have underestimated their problems.

Keywords: imperforate anus; parental experiences; care of children (search for similar items in EconPapers)
Date: 2006
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Persistent link: https://EconPapers.repec.org/RePEc:sae:clnure:v:15:y:2006:i:4:p:290-305

DOI: 10.1177/1054773806291856

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