Excess burden of a chronic disabling condition: life lost due to traumatic spinal cord injury in a Swiss population-based cohort study

Jonviea D. Chamberlain (), Anne Buzzell, Hans Peter Gmünder, Kerstin Hug, Xavier Jordan, André Moser, Martin Schubert, Marcel Zwahlen and Martin W. G. Brinkhof
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Jonviea D. Chamberlain: Swiss Paraplegic Research
Anne Buzzell: Swiss Paraplegic Research
Hans Peter Gmünder: Swiss Paraplegic Center
Kerstin Hug: REHAB, Basel
Xavier Jordan: Clinique Romande de Réadaptation
André Moser: University of Zurich
Martin Schubert: Balgrist University Hospital
Marcel Zwahlen: University of Bern
Martin W. G. Brinkhof: Swiss Paraplegic Research

International Journal of Public Health, 2019, vol. 64, issue 7, No 14, 1097-1105

Abstract: Abstract Objectives To estimate excess mortality and life years lost in a Swiss cohort of individuals with traumatic spinal cord injury (TSCI). Methods This study uses population-based data collected in the Swiss Spinal Cord Injury Cohort (SwiSCI) study, which covers all specialized rehabilitation centres. Flexible parametric survival models were used to model life years remaining (LYR), potential years life lost (PYLL), relative survival and excess hazard ratios. Results Men and women with TSCI and an attained age of 30 were estimated to have 42 LYR (95% CI = 37.9–45.5) and 43 LYR (95% CI = 40.1–45.5), respectively; this equates to a life expectancy (LE) of 80.6 and 76.9% of that of the Swiss general population. With respect to lesion level and completeness, persons with incomplete paraplegia had 45.1 LYR at an attained age of 30, whereas individuals with complete tetraplegia only had 28.7 LYR. This pattern was similar for PYLL. Conclusions The extended LE following TSCI, even for the most severe lesions, underscores the need for sustained follow-up to support functioning and health for individuals ageing with SCI.

Keywords: Mortality; Burden; Life expectancy; Potential years life lost; Excess mortality; Spinal cord injury (search for similar items in EconPapers)
Date: 2019
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DOI: 10.1007/s00038-019-01265-6

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