Paradigm shifts in disability and health: Toward more ethical public health research

K.E. McDonald and D.M. Raymaker

American Journal of Public Health, 2013, vol. 103, issue 12, 2165-2173

Abstract: Disability is often considered a health outcome disproportionately experienced byminority groups. It is also possible to view people with disabilities as a minority group that itself experiences health disparities. Calls to reduce these disparities necessitate the inclusion of people with developmental disabilities in research, although resulting ethical issues can thwart scientific progress. Using disability rights principles can help address ethical challenges and promote safe, respectful public health research. Examples include applying human rights frameworks, providing accommodations, attending to power, countering legacies of deficits-based models of disability, and transforming access to science more broadly. Collectively, these strategies can encourage broader engagement in safe, respectful, inclusive public health research aimed at promoting the health and well-being of people with developmental disabilities.

Keywords: article; disabled person; ethics; human; human rights; persuasive communication; public health; research ethics; United States; ethics; public health, Coercion; Disabled Persons; Ethics, Research; Human Rights; Humans; Public Health; United States, Coercion; Disabled Persons; Ethics, Research; Human Rights; Humans; Public Health; United States (search for similar items in EconPapers)
Date: 2013
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Citations: View citations in EconPapers (3)

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Persistent link: https://EconPapers.repec.org/RePEc:aph:ajpbhl:10.2105/ajph.2013.301286_8

DOI: 10.2105/AJPH.2013.301286

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