Creating research capacity through a tribally based institutional review board

D.J. Morton, J. Proudfit, D. Calac, M. Portillo, G. Lofton-Fitzsimmons, T. Molina, R. Flores, B. Lawson-Risso and R. Majel-McCauley

American Journal of Public Health, 2013, vol. 103, issue 12, 2160-2164

Abstract: Tribal groups work tirelessly to maintain sovereignty rights, preserving and upholding tribal authority and protection over their land, people, businesses, and health. Moreover, the conduct of health science research by outsiders has had its share of an unethical, misguided, and abusive past. Tribally based institutional review boards (IRBs) are addressing these issues in an effort to control new health science research, set their own research agenda, and protect their people in the same spirit as has been accomplished through the perpetuation of sovereignty rights. We describe the success of a tribally based IRB at creating new capacity for health research and enhanced levels of trust, including bidirectional cultural education between academic researchers and tribal IRB committee members.

Keywords: American Indian; article; Canada; capacity building; community care; cultural competence; ethics; human; medical research; methodology; organization and management; professional standard; United States; capacity building; procedures, Biomedical Research; Canada; Capacity Building; Community Networks; Cultural Competency; Ethics Committees, Research; Humans; Indians, North American; United States, Biomedical Research; Canada; Capacity Building; Community Networks; Cultural Competency; Ethics Committees, Research; Humans; Indians, North American; United States (search for similar items in EconPapers)
Date: 2013
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Citations: View citations in EconPapers (2)

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Persistent link: https://EconPapers.repec.org/RePEc:aph:ajpbhl:10.2105/ajph.2013.301473_5

DOI: 10.2105/AJPH.2013.301473

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