Moving forward: Breaking the cycle of mistrust between American Indians and researchers

C.M. Pacheco, S.M. Daley, T. Brown, M. Filippi, K.A. Greiner and C.M. Daley

American Journal of Public Health, 2013, vol. 103, issue 12, 2152-2159

Abstract: American Indians (AIs) have some of the poorest documented health outcomes of any racial/ethnic group. Research plays a vital role in addressing these health disparities. Historical and recent instances of unethical research, specifically the Havasupai diabetes project, have generated mistrust in AI communities. To address the concerns about unethical research held by some AIs in the Heartland (Midwest), the Center for American Indian Community Health (CAICH) has launched a series of efforts to inform AIs about research participants' rights. CAICH educates health researchers about the importance of learning and respecting a community's history, culture, values, and wishes when engaging in research with that community. Through community-based participatory research, CAICH is also empowering AIs to assert their rights as research participants.

Keywords: American Indian; blood sampling; community care; diabetes mellitus; ethics; ethnology; genocide; history; human; legal aspect; minority health; research ethics; statistics and numerical data; trust; United States; article; diabetes mellitus; ethnology; statistics, Arizona; Blood Specimen Collection; Community Networks; Diabetes Mellitus; Ethics, Research; Genocide; History, 19th Century; History, 20th Century; Humans; Indians, North American; Minority Health; Trust, Arizona; Blood Specimen Collection; Community Networks; Diabetes Mellitus; Ethics, Research; Genocide; History, 19th Century; History, 20th Century; Humans; Indians, North American; Minority Health; Trust (search for similar items in EconPapers)
Date: 2013
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Citations: View citations in EconPapers (7)

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Persistent link: https://EconPapers.repec.org/RePEc:aph:ajpbhl:10.2105/ajph.2013.301480_1

DOI: 10.2105/AJPH.2013.301480

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