Ethical and psychosocial considerations in informing HIV-exposed uninfected children that they were exposed to HIV and antiretroviral medications in utero

R. Klitzman, C.A. Mellins, M.M. Philbin, E.J. Abrams and R.H. Remien

American Journal of Public Health, 2016, vol. 106, issue 8, 1390-1396

Abstract: We build onwhat is known about the potential long-term health effects of perinatal antiretroviral medication exposure to examine ethical and psychosocial issues associated with disclosure by applying lessons from other health conditions, theories of child and adolescent development and rights, and the relevant literature and legal contexts. We present 2 cases to highlight potential issues; apply a bioethical framework that includes principles of autonomy, beneficence, nonmaleficence, and justice; and explore other factors, including the current uncertainty about these exposures' possible long-term health risks. This ethical framework can help clinicians and researchers consider and balance relevant concerns in deciding whether to inform offspring of HIV and related exposures. © 2013 American Public Health Association.

Keywords: beneficence; case report; child; exposure; health hazard; human; Human immunodeficiency virus; justice; progeny; scientist; uncertainty; confidentiality; ethics; female; health insurance; HIV Infections; interpersonal communication; morality; personal autonomy; pregnancy; Pregnancy Complications, Infectious; prenatal exposure; prevention and control; psychology; social justice; social stigma; United States; vertical transmission, antiretrovirus agent, Anti-Retroviral Agents; Confidentiality; Disclosure; Female; Health Insurance Portability and Accountability Act; HIV Infections; Humans; Infectious Disease Transmission, Vertical; Morals; Personal Autonomy; Pregnancy; Pregnancy Complications, Infectious; Prenatal Exposure Delayed Effects; Social Justice; Social Stigma; United States (search for similar items in EconPapers)
Date: 2016
References: Add references at CitEc
Citations:

Downloads: (external link)
http://hdl.handle.net/10.2105/AJPH.2016.303257

Related works:
This item may be available elsewhere in EconPapers: Search for items with the same title.

Export reference: BibTeX RIS (EndNote, ProCite, RefMan) HTML/Text

Persistent link: https://EconPapers.repec.org/RePEc:aph:ajpbhl:10.2105/ajph.2016.303257_5

DOI: 10.2105/AJPH.2016.303257

Access Statistics for this article

American Journal of Public Health is currently edited by Alfredo Morabia

More articles in American Journal of Public Health from American Public Health Association
Bibliographic data for series maintained by Christopher F Baum ().