Conducting accessible research: Including people with disabilities in public health, epidemiological, and outcomes studies

D. Rios, S. Magasi, C. Novak and M. Harniss

American Journal of Public Health, 2016, vol. 106, issue 12, 2137-2144

Abstract: Peoplewithdisabilitiesarelargely absentfrom mainstream healthresearch.Exclusionof people with disabilities may be explicit, attributable to poorly justified exclusion criteria, or implicit,attributable toinaccessiblestudy documents,interventions, orresearch measures. Meanwhile, people with disabilities experience poorer health, greater incidence of chronic conditions, and higher health care expenditure than people without disabilities.We outline our approach to "accessible research design"-research accessible to and inclusive of people with disabilities. We describe a model that includes 3 tiers: universal design, accommodations, and modifications. Through our work on several large-scale research studies, we provide pragmatic examples of accessible research design. Making efforts to include people with disabilities in public health, epidemiological, and outcomes studies will enhance the interpretability of findings for a significant patient population.

Keywords: disabled person; epidemiology; human; nonbiological model; outcome assessment; public health; statistical bias, Bias (Epidemiology); Disabled Persons; Epidemiologic Studies; Humans; Models, Organizational; Outcome Assessment (Health Care); Public Health (search for similar items in EconPapers)
Date: 2016
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Citations: View citations in EconPapers (3)

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Persistent link: https://EconPapers.repec.org/RePEc:aph:ajpbhl:10.2105/ajph.2016.303448_7

DOI: 10.2105/AJPH.2016.303448

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