Policy recommendations for rare disease centres of expertise

Ahmed M. Syed, Rob Camp, Christina Mischorr-Boch, Francois Houÿez and Arja R. Aro

Evaluation and Program Planning, 2015, vol. 52, issue C, 78-84

Abstract: Rare diseases are a serious public health concern and are a priority in the EU. This study aims to develop policy recommendations for rare disease centres of expertise (CoEs) in order to improve standards and quality of care.

Keywords: Rare disease; Delphi technique; Health policy; Centre of expertise; European reference network (search for similar items in EconPapers)
Date: 2015
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Persistent link: https://EconPapers.repec.org/RePEc:eee:epplan:v:52:y:2015:i:c:p:78-84

DOI: 10.1016/j.evalprogplan.2015.03.006

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