 Data as scientific currency: Challenges experienced by researchers with sharing health data in sub-Saharan AfricaJyothi Chabilall, Qunita Brown, Nezerith Cengiz and Keymanthri Moodley PLOS Digital Health, 2024, vol. 3, issue 10, 1-24 Abstract: Innovative information-sharing techniques and rapid access to stored research data as scientific currency have proved highly beneficial in healthcare and health research. Yet, researchers often experience conflict between data sharing to promote health-related scientific knowledge for the common good and their personal academic advancement. There is a scarcity of studies exploring the perspectives of health researchers in sub-Saharan Africa (SSA) regarding the challenges with data sharing in the context of data-intensive research. The study began with a quantitative survey and research, after which the researchers engaged in a qualitative study. This qualitative cross-sectional baseline study reports on the challenges faced by health researchers, in terms of data sharing. In-depth interviews were conducted via Microsoft Teams between July 2022 and April 2023 with 16 health researchers from 16 different countries across SSA. We employed purposive and snowballing sampling techniques to invite participants via email. The recorded interviews were transcribed, coded and analysed thematically using ATLAS.ti. Five recurrent themes and several subthemes emerged related to (1) individual researcher concerns (fears regarding data sharing, publication and manuscript pressure), (2) structural issues impacting data sharing, (3) recognition in academia (scooping of research data, acknowledgement and research incentives) (4) ethical challenges experienced by health researchers in SSA (confidentiality and informed consent, commercialisation and benefit sharing) and (5) legal lacunae (gaps in laws and regulations). Significant discomfort about data sharing exists amongst health researchers in this sample of respondents from SSA, resulting in a reluctance to share data despite acknowledging the scientific benefits of such sharing. This discomfort is related to the lack of adequate guidelines and governance processes in the context of health research collaborations, both locally and internationally. Consequently, concerns about ethical and legal issues are increasing. Resources are needed in SSA to improve the quality, value and veracity of data–as these are ethical imperatives. Strengthening data governance via robust guidelines, legislation and appropriate data sharing agreements will increase trust amongst health researchers and data donors alike.Author summary: In our study, we explore the challenges faced by health researchers in sub-Saharan Africa (SSA) with respect to data sharing. While there are many benefits of sharing data, researchers from SSA remain hesitant to share in the context of data-intensive research. Using in-depth research interviews with 16 researchers from diverse countries in SSA, we identified five key barriers to effective data sharing. These barriers include inadequate guidelines and governance processes and fears around ethical and legal issues. If researchers are to reap the rewards of data as scientific currency, resources must be allocated to improve the quality, value and veracity of data. Improving data governance is critical to building trust amongst health researchers and data donors to facilitate the process of data sharing. Date: 2024 Downloads: (external link) Related works: Export reference: BibTeX RIS (EndNote, ProCite, RefMan) HTML/Text Persistent link: https://EconPapers.repec.org/RePEc:plo:pdig00:0000635 DOI: 10.1371/journal.pdig.0000635 Access Statistics for this article More articles in PLOS Digital Health from Public Library of Science |
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