A Randomized Study of Scleroderma Health State Values: A Picture Is Worth a Thousand Words, and Quite a Few Utilities

Dinesh Khanna, Robert M. Kaplan, Mark H. Eckman, Ron D. Hays, Anthony C. Leonard, Shaari S. Ginsburg and Joel Tsevat
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Dinesh Khanna: Division of Rheumatology, Department of Medicine, David Geffen School of Medicine, University of California at Los Angeles, Los Angeles, CA, Department of Health Services, School of Public Health, University of California at Los Angeles, Los Angeles, CA, dkhanna@mednet.ucla.edu
Robert M. Kaplan: Department of Health Services, School of Public Health, University of California at Los Angeles, Los Angeles, CA
Mark H. Eckman: Division of General Internal Medicine, Department of Internal Medicine, University of Cincinnati, Cincinnati, OH, Institute for the Study of Health, University of Cincinnati, Cincinnati, OH
Ron D. Hays: Department of Health Services, School of Public Health, University of California at Los Angeles, Los Angeles, CA, Division of General Internal Medicine, Department of Medicine, David Geffen School of Medicine, University of California at Los Angeles, Los Angeles, CA, RAND, Santa Monica, CA
Anthony C. Leonard: Institute for the Study of Health, University of Cincinnati, Cincinnati, OH
Shaari S. Ginsburg: Veterans Affairs Medical Center, Cincinnati, OH
Joel Tsevat: Division of General Internal Medicine, Department of Internal Medicine, University of Cincinnati, Cincinnati, OH, Institute for the Study of Health, University of Cincinnati, Cincinnati, OH, Veterans Affairs Medical Center, Cincinnati, OH

Medical Decision Making, 2009, vol. 29, issue 1, 7-14

Abstract: Objective. Assigning utilities to hypothetical health states requires that the health states be described in adequate detail, but there is no agreement on exactly how health states should be described. We assess utilities from the general public for health states common in scleroderma (SSc) by describing the health states in writing alone v. with photographs of patients with SSc. Methods. Subjects rated several SSc health states on a 0 to 100 rating scale (RS) and completed computer-assisted time tradeoff (TTO; range, 0.0 — 1.0) and standard gamble (SG; range, 0.0 — 1.0) assessments. Half of the subjects were assigned to be shown photographs of patients with SSc health states in addition to written health state descriptions, whereas the other half were given only the written descriptions. Results. Of the 213 participants, 133 (62%) were female, 138 (65%) were Caucasian, and 62 (29%) were African American. Median RS, TTO, and SG scores for 5 SSc health states ranged from 20 to 70, 0.28 to 0.94, and 0.50 to 0.90, respectively. In bivariate analyses, showing pictures was associated with lower RS scores for 2 of 5 health states and lower SG values for all 5 health states ( P

Keywords: Key words: scleroderma; utility assessment; quality of life; measurement methods. (Med Decis Making 2009; 29:7—14) (search for similar items in EconPapers)
Date: 2009
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Persistent link: https://EconPapers.repec.org/RePEc:sae:medema:v:29:y:2009:i:1:p:7-14

DOI: 10.1177/0272989X08322010

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