Using Narratives to Correct Forecasting Errors in Pediatric Tracheostomy Decision Making

Haoyang Yan, Patricia J. Deldin, Stephanie K. Kukora, Cynthia Arslanian-Engoren, Kenneth Pituch and Brian J. Zikmund-Fisher
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Haoyang Yan: Department of Psychology, University of Michigan, Ann Arbor, MI, USA
Patricia J. Deldin: Department of Psychology, University of Michigan, Ann Arbor, MI, USA
Stephanie K. Kukora: C.S. Mott Children’s Hospital and Department of Pediatrics, Michigan Medicine, Ann Arbor, MI, USA
Cynthia Arslanian-Engoren: Department of Health Behavior and Biological Sciences, School of Nursing, University of Michigan, Ann Arbor, MI, USA
Kenneth Pituch: C.S. Mott Children’s Hospital and Department of Pediatrics, Michigan Medicine, Ann Arbor, MI, USA
Brian J. Zikmund-Fisher: Department of Health Behavior and Health Education, University of Michigan, Ann Arbor, MI, USA

Medical Decision Making, 2021, vol. 41, issue 3, 305-316

Abstract: Purpose Parents who face goals-of-care tracheostomy decisions may lack an understanding of challenges affecting their child’s and family’s long-term quality of life (QOL) to accurately forecast possible outcomes for decision making. We sought to examine whether and how parents’ narratives of the child’s and family’s long-term QOL influence parental tracheostomy decisions and forecasting. Method We recruited US adult Amazon Mechanical Turk participants ( N = 1966) who self-reported having a child (

Keywords: decision making; forecasting; narratives; patient education as topic; pediatric tracheostomy (search for similar items in EconPapers)
Date: 2021
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Persistent link: https://EconPapers.repec.org/RePEc:sae:medema:v:41:y:2021:i:3:p:305-316

DOI: 10.1177/0272989X21990693

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