A Longitudinal Study of the Association of Awareness of Disease Incurability with Patient-Reported Outcomes in Heart Failure

Jia Jia Lee, Chetna Malhotra, Kheng Leng David Sim, Khung Keong Yeo, Eric Finkelstein and Semra Ozdemir
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Jia Jia Lee: Lien Centre for Palliative Care, Signature Programme in Health Services and System Research, Duke-NUS Medical School, Singapore
Chetna Malhotra: Lien Centre for Palliative Care, Signature Programme in Health Services and System Research, Duke-NUS Medical School, Singapore
Kheng Leng David Sim: National Heart Centre Singapore, Singapore
Khung Keong Yeo: National Heart Centre Singapore, Singapore
Eric Finkelstein: Lien Centre for Palliative Care, Signature Programme in Health Services and System Research, Duke-NUS Medical School, Singapore
Semra Ozdemir: Lien Centre for Palliative Care, Signature Programme in Health Services and System Research, Duke-NUS Medical School, Singapore

Medical Decision Making, 2025, vol. 45, issue 1, 97-108

Abstract: Objectives To examine awareness of disease incurability among patients with heart failure over 24 mo and its associations with patient characteristics and patient-reported outcomes (distress, emotional, and spiritual well-being). Methods This study analyzed 24-mo data from a prospective cohort study of 251 patients with heart failure (New York Heart Association class III/IV) recruited from inpatient wards in Singapore General Hospital and National Heart Centre Singapore. Patients were asked to report if their doctor told them they were receiving treatment to cure their condition. “No†responses were categorized as being aware of disease incurability, while “Yes†and “Uncertain†were categorized as being unaware and being uncertain about disease incurability, respectively. We used mixed-effects multinomial logistic regression to investigate the associations between awareness of disease incurability and patient characteristics and mixed-effects linear regressions to investigate associations with patient outcomes. Results The percentage of patients who were aware of disease incurability increased from 51.6% at baseline to 76.4% at 24-mo follow-up ( P

Keywords: heart failure; prognostic information; patient-reported outcome measures (search for similar items in EconPapers)
Date: 2025
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Persistent link: https://EconPapers.repec.org/RePEc:sae:medema:v:45:y:2025:i:1:p:97-108

DOI: 10.1177/0272989X241297694

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