Child–Parent Agreement in the Assessment of Health-Related Quality of Life Using the CHU9D and the PedsQLTM

Diana Khanna (), Jyoti Khadka (), Christine Mpundu-Kaambwa () and Julie Ratcliffe ()
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Diana Khanna: Flinders University
Jyoti Khadka: Flinders University
Christine Mpundu-Kaambwa: Flinders University
Julie Ratcliffe: Flinders University

Applied Health Economics and Health Policy, 2023, vol. 21, issue 6, No 10, 937-947

Abstract: Abstract Objective This study examined the inter-rater agreement between child-self and parental proxy health-related quality of life (HRQoL) ratings (overall and domain level) using two different generic child-specific measures, the Child Health Utility 9D (CHU9D) and the Pediatric Quality of Life Inventory (PedsQLTM), in a community-based sample of Australian children. A secondary objective was to investigate the impact of age on child–parent agreement across the dimensions of the two measures. Methods A total of 85 child–parent dyads (children aged 6–12 years) recruited from the community completed the self and proxy versions of the CHU9D and the PedsQLTM, respectively. The inter-rater agreement was estimated using Concordance Correlation Coefficients (CCC) and Gwet’s Agreement Coefficient (AC1) for the overall sample and across age-groups. Results Agreement was low for overall HRQoL for both the CHU9D (CCC = 0.28) and the PedsQLTM (CCC = 0.39). Across the CHU9D dimensions, agreement was the highest for ‘sad’ (AC1 = 0.83) and lowest for ‘tired’ (AC1 = 0.31). The PedsQLTM demonstrated stronger agreement (AC1 = 0.41–0.6) for the physical health dimension but weaker for the psychosocial dimensions (AC1

Date: 2023
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DOI: 10.1007/s40258-023-00831-7

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