Understanding Treatment Burden for Children Treated for Growth Hormone Deficiency

Meryl Brod (), Lise Højbjerre, Suzanne Lessard Alolga, Jane F. Beck, Lars Wilkinson and Michael Højby Rasmussen
Additional contact information
Meryl Brod: The Brod Group
Lise Højbjerre: Novo Nordisk
Suzanne Lessard Alolga: The Brod Group
Jane F. Beck: The Brod Group
Lars Wilkinson: Novo Nordisk
Michael Højby Rasmussen: Novo Nordisk

The Patient: Patient-Centered Outcomes Research, 2017, vol. 10, issue 5, No 13, 653-666

Abstract: Abstract Objective Growth hormone deficiency (GHD) treatment for children requires growth hormone injections, typically administered daily until the child reaches adult height. Child GHD treatment burden is not well understood and no disease-specific measures exist to assess this burden. The purpose of the study was to explore GHD treatment burden for children and their parents by conducting concept elicitation interviews supporting a theoretical model of the impact of GHD treatment. Methods Four focus groups (in Germany) and 52 telephone interviews (in the UK and USA) were conducted with children/adolescents with GHD aged 8 to

Keywords: Growth Hormone; Focus Group; Growth Hormone Deficiency; Noonan Syndrome; Treatment Burden (search for similar items in EconPapers)
Date: 2017
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Citations: View citations in EconPapers (1)

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DOI: 10.1007/s40271-017-0237-9

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