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The Patient: Patient-Centered Outcomes Research

2008 - 2019

Current editor(s): Christopher I. Carswell

Johns Hopkins Bloomberg School of Public Health
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Volume 12, issue 5, 2019

Support Tools for Preference-Sensitive Decisions in Healthcare: Where Are We? Where Do We Go? How Do We Get There? pp. 439-443 Downloads
Jan Ostermann, Derek S. Brown, Janine A. Til, Nick Bansback, France Légaré, Deborah A. Marshall and Meenakshi Bewtra
Patient-Reported Outcome Measures in Atopic Dermatitis and Chronic Hand Eczema in Adults pp. 445-459 Downloads
Amy Barrett, Julie Hahn-Pedersen, Nana Kragh, Emily Evans and Ari Gnanasakthy
Humanization of Care: Key Elements Identified by Patients, Caregivers, and Healthcare Providers. A Systematic Review pp. 461-474 Downloads
Isolde M. Busch, Francesca Moretti, Giulia Travaini, Albert W. Wu and Michela Rimondini
Systematic Review of Public Preferences for the Allocation of Donor Organs for Transplantation: Principles of Distributive Justice pp. 475-489 Downloads
Carina Oedingen, Tim Bartling, Axel C. Mühlbacher, Harald Schrem and Christian Krauth
Do Non-participants at Screening have a Different Threshold for an Acceptable Benefit–Harm Ratio than Participants? Results of a Discrete Choice Experiment pp. 491-501 Downloads
Tina Birgitte Hansen, Jes Sanddal Lindholt, Axel Diederichsen and Rikke Søgaard
Patient Experience with Congenital (Hereditary) Thrombotic Thrombocytopenic Purpura: A Conceptual Framework of Symptoms and Impacts pp. 503-512 Downloads
Abiola O. Oladapo, Diane Ito, Christopher Hibbard, Stephanie E. Bean, Robert N. Krupnick and Bruce M. Ewenstein
Patient Preferences in the Medical Product Life Cycle: What do Stakeholders Think? Semi-Structured Qualitative Interviews in Europe and the USA pp. 513-526 Downloads
Rosanne Janssens, Selena Russo, Eline van Overbeeke, Chiara Whichello, Sarah Harding, Jürgen Kübler, Juhaeri Juhaeri, Karin Schölin Bywall, Alina Comanescu, Axel Hueber, Matthias Englbrecht, Nikoletta Nikolenko, Gabriella Pravettoni, Steven Simoens, Hilde Stevens, Richard Hermann, Bennett Levitan, Irina Cleemput, Esther de Bekker-Grob, Jorien Veldwijk and Isabelle Huys
Analysis of Clinical Trial Exit Interview Data in Patients with Treatment-Resistant Depression pp. 527-537 Downloads
Sandy Lewis, Carla Romano, Geert Bruecker, James W. Murrough, Richard Shelton, Jaskaran B. Singh and Carol Jamieson
A Patient-Centered Description of Severe Asthma: Patient Understanding Leading to Assessment for a Severe Asthma Referral (PULSAR) pp. 539-549 Downloads
Tonya A. Winders, Andrew M. Wilson, Monica J. Fletcher, Anthony McGuinness and David B. Price

Volume 12, issue 4, 2019

Towards Meaningful Engagement for the Patient Voice pp. 361-363 Downloads
Peter J. Pitts
Health-Related Quality of Life in Patients with Adult-Onset Myotonic Dystrophy Type 1: A Systematic Review pp. 365-373 Downloads
Erik Landfeldt, Josefin Edström, Cecilia Jimenez-Moreno, Baziel G. M. Engelen, Janbernd Kirschner and Hanns Lochmüller
Patient-Community Perspectives on Real-World Evidence: Enhancing Engagement, Understanding, and Trust pp. 375-381 Downloads
Elisabeth M. Oehrlein, Jennifer S. Graff, Jason Harris and Eleanor M. Perfetto
EQ-5D-5L is More Responsive than EQ-5D-3L to Treatment Benefit of Cataract Surgery pp. 383-392 Downloads
Mihir Gandhi, Marcus Ang, Kelvin Teo, Chee Wai Wong, Yvonne Chung-Hsi Wei, Rachel Lee-Yin Tan, Mathieu F. Janssen and Nan Luo
Patient and Oncologist Preferences for the Treatment of Adults with Advanced Soft Tissue Sarcoma: A Discrete Choice Experiment pp. 393-404 Downloads
Jasmina Ivanova, Lisa M. Hess, Viviana Garcia-Horton, Sophia Graham, Xinyue Liu, Yajun Zhu and Steven Nicol
Measuring the Burden of Schizophrenia Using Clinician and Patient-Reported Measures: An Exploratory Analysis of Construct Validity pp. 405-417 Downloads
Matthew Franklin, Clara Mukuria, Brendan Mulhern, Irwin Tran, John Brazier and Stuart Watson
Validity and Reliability of a Novel Multimodal Questionnaire for the Assessment of Abdominal Symptoms in People with Cystic Fibrosis (CFAbd-Score) pp. 419-428 Downloads
Anke Jaudszus, Elisa Zeman, Tatjana Jans, Elena Pfeifer, Harold Tabori, Christin Arnold, Ruth K. Michl, Michael Lorenz, Natalie Beiersdorf and Jochen G. Mainz
Correction to: Important Treatment Outcomes for Patients with Psoriatic Arthritis: A Multisite Qualitative Study pp. 437-437 Downloads
Emma Dures, Sarah Hewlett, Jane Lord, Clive Bowen, Neil McHugh and William Tillett

Volume 12, issue 3, 2019

Issues in the Design of Discrete Choice Experiments pp. 281-285 Downloads
Richard Norman, Benjamin M. Craig, Paul Hansen, Marcel F. Jonker, John Rose, Deborah J. Street and Brendan Mulhern
A Guide to Measuring and Interpreting Attribute Importance pp. 287-295 Downloads
Juan Marcos Gonzalez
Patient Perspectives on the Value of Patient Preference Information in Regulatory Decision Making: A Qualitative Study in Swedish Patients with Rheumatoid Arthritis pp. 297-305 Downloads
Karin Schölin Bywall, Jorien Veldwijk, Mats G. Hansson and Ulrik Kihlbom
Healthcare Experience and their Relationship with Demographic, Disease and Healthcare-Related Variables: A Cross-Sectional Survey of Patients with Chronic Diseases Using the IEXPAC Scale pp. 307-317 Downloads
Domingo Orozco-Beltrán, Javier Toro, María J. Galindo, Ignacio Marín-Jiménez, Francesc Casellas, María J. Fuster-RuizdeApodaca, María L. García-Vivar, Antonio Hormigo-Pozo, Mercedes Guilabert, Nuria Sánchez-Vega, Gonzalo Fernández and Luis Cea-Calvo
High Proportion of Subjective Component to the Disease Activity Score is Associated with Favorable Response to Abatacept in Rheumatoid Arthritis pp. 319-326 Downloads
Jeong Seok Lee, Harris Ahmad, Seung-Cheol Shim, Sang-Cheol Bae, Yeong Wook Song and Eun Young Lee
Creation of a Decision Support Tool for Expectant Parents Facing Threatened Periviable Delivery: Application of a User-Centered Design Approach pp. 327-337 Downloads
Brownsyne Tucker Edmonds, Shelley M. Hoffman, Dustin Lynch, Erin Jeffries, Kelli Jenkins, Sarah Wiehe, Nerissa Bauer and Miriam Kuppermann
Elicitation of Health-Related Utility in Perianal Fistula in Crohn’s Disease pp. 339-348 Downloads
Louise Longworth, Donna Fountain, Jeshika Singh, Ismail Azzabi, Glynn Owen, Ulf Lundstam and Shaji Sebastian
The Value of Treatment Processes in Germany: A Discrete Choice Experiment on Patient Preferences in Complementary and Conventional Medicine pp. 349-360 Downloads
Daniela Adam, Theresa Keller, Axel Mühlbacher, Maximilian Hinse, Katja Icke, Michael Teut, Benno Brinkhaus and Thomas Reinhold

Volume 12, issue 2, 2019

A Scoping Review of Key Health Items in Self-Report Instruments Used Among Solid Organ Transplant Recipients pp. 171-181 Downloads
Ahmad Shahabeddin Parizi, Paul F. M. Krabbe, Erik Buskens, Stephan J. L. Bakker and Karin M. Vermeulen
Tools Measuring Quality of Death, Dying, and Care, Completed after Death: Systematic Review of Psychometric Properties pp. 183-197 Downloads
Nuriye Kupeli, Bridget Candy, Gabrielle Tamura-Rose, Guy Schofield, Natalie Webber, Stephanie E. Hicks, Theodore Floyd, Bella Vivat, Elizabeth L. Sampson, Patrick Stone and Trefor Aspden
Parent Empowerment in Pediatric Healthcare Settings: A Systematic Review of Observational Studies pp. 199-212 Downloads
Laura Ellen Ashcraft, Miya Asato, Amy J. Houtrow, Dio Kavalieratos, Elizabeth Miller and Kristin N. Ray
Impact of Carotid Artery Stenosis on Quality of Life: A Systematic Review pp. 213-222 Downloads
Ahmed Aber, Aoife Howard, Helen Buckley Woods, Georgina Jones and Jonathan Michaels
Treatment Decisions for Advanced Non-Squamous Non-Small Cell Lung Cancer: Patient and Physician Perspectives on Maintenance Therapy pp. 223-233 Downloads
Suzanne McMullen, Lisa M. Hess, Edward S. Kim, Benjamin Levy, Mohamed Mohamed, David Waterhouse, Antoinette Wozniak, Sarah Goring, Kerstin Müller, Catherine Muehlenbein, Himani Aggarwal, Yajun Zhu, Ana B. Oton, Jennifer L. Ersek and Katherine B. Winfree
General Population vs. Patient Preferences in Anticoagulant Therapy: A Discrete Choice Experiment pp. 235-246 Downloads
Mehdi Najafzadeh, Sebastian Schneeweiss, Niteesh K. Choudhry, Jerry Avorn and Joshua J. Gagne
How Do Members of the Duchenne and Becker Muscular Dystrophy Community Perceive a Discrete-Choice Experiment Incorporating Uncertain Treatment Benefit? An Application of Research as an Event pp. 247-257 Downloads
John F. P. Bridges, Jui-Hua Tsai, Ellen Janssen, Norah L. Crossnohere, Ryan Fischer and Holly Peay
Acceptability of Patient-Reported Outcome and Experience Measures for Hepatitis C Treatment Among People Who Use Drugs pp. 259-265 Downloads
Annie Madden, Max Hopwood, Joanne Neale and Carla Treloar
Developing Sexual and Reproductive Health Educational Resources for Young Women with Cystic Fibrosis: A Structured Approach to Stakeholder Engagement pp. 267-276 Downloads
Traci M. Kazmerski, Elizabeth Miller, Gregory S. Sawicki, Phaedra Thomas, Olga Prushinskaya, Eliza Nelson, Kelsey Hill, Anna Miller and S. Jean Emans
Multi-Method Patient-Engagement Approach: A Case Example from a PCORI-Funded Training Project pp. 277-280 Downloads
Elisabeth M. Oehrlein, T. Rose Love, Chinenye Anyanwu, Maya L. Hanna, Jacqueline Kraska and Eleanor M. Perfetto

Volume 12, issue 1, 2019

Including Opt-Out Options in Discrete Choice Experiments: Issues to Consider pp. 1-14 Downloads
Danny Campbell and Seda Erdem
Symptoms and Concerns Among Children and Young People with Life-Limiting and Life-Threatening Conditions: A Systematic Review Highlighting Meaningful Health Outcomes pp. 15-55 Downloads
Eve Namisango, Katherine Bristowe, Matthew J. Allsop, Fliss E. M. Murtagh, Melanie Abas, Irene J. Higginson, Julia Downing and Richard Harding
Symptoms and Impacts in Metastatic Castration-Resistant Prostate Cancer: Qualitative Findings from Patient and Physician Interviews pp. 57-67 Downloads
Stefan Holmstrom, Shevani Naidoo, James Turnbull, Emily Hawryluk, Jean Paty and Robert Morlock
Video or In-Clinic Consultation? Selection of Attributes as Preparation for a Discrete Choice Experiment Among Key Stakeholders pp. 69-82 Downloads
Irit Chudner, Margalit Goldfracht, Hadass Goldblatt, Anat Drach-Zahavy and Khaled Karkabi
Understanding ‘Good Health care’ from the Patient’s Perspective: Development of a Conceptual Model Using Group Concept Mapping pp. 83-95 Downloads
Stacey A. McCaffrey, Emil Chiauzzi, Caroline Chan and Michael Hoole
A Conceptual Model of Angelman Syndrome and Review of Relevant Clinical Outcomes Assessments (COAs) pp. 97-112 Downloads
Joseph C. Grieco, Beverly Romero, Emuella Flood, Raquel Cabo and Jeannie Visootsak
“I Was Trying to Do the Maths”: Exploring the Impact of Risk Communication in Discrete Choice Experiments pp. 113-123 Downloads
Caroline Vass, Dan Rigby and Katherine Payne
Development of an Item Pool for a Needs-Based Measure of Quality of Life of Carers of a Family Member with Dementia pp. 125-136 Downloads
Jan R. Oyebode, Simon Pini, Emma Ingleson, Molly Megson, Mike Horton, Linda Clare, Hareth Al-Janabi, Carol Brayne and Penny Wright
Development of a Discrete-Choice Experiment (DCE) to Elicit Adolescent and Parent Preferences for Hypodontia Treatment pp. 137-148 Downloads
Sophy Barber, Hilary Bekker, Joachim Marti, Sue Pavitt, Balvinder Khambay and David Meads
Validity of the Patient Experiences and Satisfaction with Medications (PESaM) Questionnaire pp. 149-162 Downloads
Merel L. Kimman, Marlies S. Wijsenbeek, Sander M. J. van Kuijk, Kioa L. Wijnsma, Nicole C. A. J. van de Kar, Marjolein Storm, Xana Jaarsveld and Carmen D. Dirksen
Implementing a Health Confidence Tool at Time of Discharge pp. 163-165 Downloads
T. Joseph Mattingly and Khang Nong
Comment on: Tools Measuring Quality of Death, Dying, and Care, Completed After Death: Systematic Review of Psychometric Properties pp. 167-167 Downloads
José E. Montoya-Medina, Giordana Poletti-Jabbour, Nicole Urrunaga and Heyson A. Jiménez
Authors’ Reply to Montoya et al. Comment On: “Tools Measuring Quality of Death, Dying, and Care, Completed After Death: Systematic Review of Psychometric Properties” pp. 169-169 Downloads
Nuriye Kupeli, Bridget Candy, Gabrielle Tamura-Rose, Guy Schofield, Natalie Webber, Stephanie E. Hicks, Theodore Floyd, Bella Vivat, Elizabeth L. Sampson, Patrick Stone and Trefor Aspden

Volume 11, issue 6, 2018

Patient-Consent Disconnects in Clinical Research pp. 577-579 Downloads
Neal W. Dickert, JoAnne Brabson, Rodney J. Hunter and Michele Riedford
Putting Patients at the Centre of Healthcare: Progress and Challenges for Health Technology Assessments pp. 581-589 Downloads
Karen M. Facey, Nicola Bedlington, Sarah Berglas, Neil Bertelsen, Ann N. V. Single and Victoria Thomas
Oh, the Places We’ll Go: Patient-Reported Outcomes and Electronic Health Records pp. 591-598 Downloads
Sarah G. Gensheimer, Albert W. Wu and Claire F. Snyder
Colorectal Cancer Screening: Preferences, Past Behavior, and Future Intentions pp. 599-611 Downloads
Carol Mansfield, Donatus U. Ekwueme, Florence K. L. Tangka, Derek S. Brown, Judith Lee Smith, Gery P. Guy, Chunyu Li and Brett Hauber
Women’s Preferences for Birthing Hospital in Denmark: A Discrete Choice Experiment pp. 613-624 Downloads
Nasrin Tayyari Dehbarez, Morten Mørkbak, Dorte Gyrd-Hansen, Niels Uldbjerg and Rikke Søgaard
Spillover Effects of Maternal Chronic Disease on Children’s Quality of Life and Behaviors Among Low-Income Families pp. 625-635 Downloads
Vivian Y. W. Guo, Carlos K. H. Wong, Rosa S. M. Wong, Esther Y. T. Yu, Patrick Ip and Cindy L. K. Lam
Unlocking the Value of Literature in Health Co-Design: Transforming Patient Experience Publications into a Creative and Accessible Card Tool pp. 637-648 Downloads
Clare Villalba, Anjali Jaiprakash, Jared Donovan, Jonathan Roberts and Ross Crawford
Development of a Discrete Choice Experiment (DCE) Questionnaire to Understand Veterans’ Preferences for Tobacco Treatment in Primary Care pp. 649-663 Downloads
David A. Katz, Kenda R. Stewart, Monica Paez, Mark W. Weg, Kathleen M. Grant, Christine Hamlin and Gary Gaeth
Converting Parkinson-Specific Scores into Health State Utilities to Assess Cost-Utility Analysis pp. 665-675 Downloads
Gang Chen, Miguel A. Garcia-Gordillo, Daniel Collado-Mateo, Borja Pozo-Cruz, José C. Adsuar, José Manuel Cordero-Ferrera, José María Abellán-Perpiñán and Fernando Ignacio Sánchez-Martínez

Volume 11, issue 5, 2018

Key Issues and Potential Solutions for Understanding Healthcare Preference Heterogeneity Free from Patient-Level Scale Confounds pp. 463-466 Downloads
Catharina G. M. Groothuis-Oudshoorn, Terry N. Flynn, Hong Il Yoo, Jay Magidson and Mark Oppe
Symposium Title: Preference Evidence for Regulatory Decisions pp. 467-473 Downloads
Juan Marcos Gonzalez, F. Reed Johnson, Bennett Levitan, Rebecca Noel and Holly Peay
Accounting for Scale Heterogeneity in Healthcare-Related Discrete Choice Experiments when Comparing Stated Preferences: A Systematic Review pp. 475-488 Downloads
Stuart J. Wright, Caroline Vass, Gene Sim, Michael Burton, Denzil Fiebig and Katherine Payne
Themes that Determine Quality of Life in Patients with Peripheral Arterial Disease: A Systematic Review pp. 489-502 Downloads
Ahmed Aber, Elizabeth Lumley, Patrick Phillips, Helen Buckley Woods, Georgina Jones and Jonathan Michaels
Patient Preferences for Managing Insomnia: A Discrete Choice Experiment pp. 503-514 Downloads
Janet M. Y. Cheung, Delwyn J. Bartlett, Carol L. Armour, Bandana Saini and Tracey-Lea Laba
The Parker Model: Applying a Qualitative Three-Step Approach to Optimally Utilize Input from Stakeholders When Introducing New Device Technologies in the Management of Chronic Rheumatic Diseases pp. 515-526 Downloads
Tanja S. Jørgensen, Marie Skougaard, Peter C. Taylor, Hans C. Asmussen, Anne Lee, Louise Klokker, Louise Svejstrup, Irina Mountian, Henrik Gudbergsen and Lars Erik Kristensen
Patient Perspective on Acute Intermittent Porphyria with Frequent Attacks: A Disease with Intermittent and Chronic Manifestations pp. 527-537 Downloads
Amy Simon, Farrah Pompilus, William Querbes, Alex Wei, Sara Strzok, Craig Penz, Desiree Lyon Howe, Jessica R. Hungate, Jae B. Kim, Sonalee Agarwal and Patrick Marquis
Adaptation, Acceptance and Adaptive Preferences in Health and Capability Well-Being Measurement Amongst Those Approaching End of Life pp. 539-546 Downloads
Joanna Coast, Cara Bailey, Rosanna Orlando, Kathy Armour, Rachel Perry, Louise Jones and Philip Kinghorn
Understanding How Chorea Affects Health-Related Quality of Life in Huntington Disease: An Online Survey of Patients and Caregivers in the United States pp. 547-559 Downloads
Eileen Mack Thorley, Ravi G. Iyer, Paul Wicks, Chris Curran, Sanjay K. Gandhi, Victor Abler, Karen E. Anderson and Noelle E. Carlozzi
Patient-Reported Symptoms Over 48 Weeks Among Participants in Randomized, Double-Blind, Phase III Non-inferiority Trials of Adults with HIV on Co-formulated Bictegravir, Emtricitabine, and Tenofovir Alafenamide versus Co-formulated Abacavir, Dolutegravir, and Lamivudine pp. 561-573 Downloads
David Wohl, Amanda Clarke, Franco Maggiolo, Will Garner, Marianne Laouri, Hal Martin and Erin Quirk

Volume 11, issue 4, 2018

Prior Authorization as a Potential Support of Patient-Centered Care pp. 371-375 Downloads
Leah Rand and Zackary Berger
Quality of Life of Patients with Type 1 Diabetes Mellitus Using Insulin Analog Glargine Compared with NPH Insulin: A Systematic Review and Policy Implications pp. 377-389 Downloads
Paulo H. R. F. Almeida, Thales B. C. Silva, Francisco de Assis Acurcio, Augusto A. Guerra Júnior, Vania E. Araújo, Leonardo M. Diniz, Brian Godman, Alessandra M. Almeida and Juliana Alvares
A Systematic Review of Discrete-Choice Experiments and Conjoint Analysis Studies in People with Multiple Sclerosis pp. 391-402 Downloads
Edward J. D. Webb, David Meads, Ieva Eskyte, Natalie King, Naila Dracup, Jeremy Chataway, Helen L. Ford, Joachim Marti, Sue H. Pavitt, Klaus Schmierer and Ana Manzano
Stigma Perceived and Experienced by Adults with Type 1 Diabetes: Linguistic Adaptation and Psychometric Validation of the Danish Version of the Type 1 Diabetes Stigma Assessment Scale (DSAS-1 DK) pp. 403-412 Downloads
Ulla Møller Hansen, Ingrid Willaing, Adriana D. Ventura, Kasper Olesen, Jane Speight and Jessica L. Browne
Patient and Family Advisory Councils (PFACs): Identifying Challenges and Solutions to Support Engagement in Research pp. 413-423 Downloads
James D. Harrison, Wendy G. Anderson, Maureen Fagan, Edmondo Robinson, Jeffrey Schnipper, Gina Symczak, Catherine Hanson, Martha B. Carnie, Jim Banta, Sherry Chen, Jonathan Duong, Celene Wong and Andrew D. Auerbach
Assessing the Importance of Treatment Goals in Patients with Psoriasis: Analytic Hierarchy Process vs. Likert Scales pp. 425-437 Downloads
Mandy Gutknecht, Marion Danner, Marthe-Lisa Schaarschmidt, Christian Gross and Matthias Augustin
Living with Merkel Cell Carcinoma (MCC): Development of a Conceptual Model of MCC Based on Patient Experiences pp. 439-449 Downloads
Howard L. Kaufman, Carla Dias Barbosa, Isabelle Guillemin, Jérémy Lambert, Lisa Mahnke and Murtuza Bharmal
Building a Bridge Between Genetics and Outcomes Research: Application in Autism (The AutGO Study) pp. 451-462 Downloads
Zohreh Talebizadeh and Ayten Shah

Volume 11, issue 3, 2018

Incorporating Quantitative Patient Preference Data into Healthcare Decision Making Processes: Is HTA Falling Behind? pp. 249-252 Downloads
David Mott
Experience-Based Values: A Framework for Classifying Different Types of Experience in Health Valuation Research pp. 253-270 Downloads
Patricia Cubi-Molla, Koonal Shah and Kristina Burström
Factors that Influence Treatment and Non-treatment Decision Making Among Individuals with Inflammatory Bowel Disease: An Integrative Review pp. 271-284 Downloads
Kendra J. Kamp and Kelly Brittain
Evaluating Risk Tolerance from a Systematic Review of Preferences: The Case of Patients with Psoriasis pp. 285-300 Downloads
Juan Marcos Gonzalez
A Systematic Review Comparing the Acceptability, Validity and Concordance of Discrete Choice Experiments and Best–Worst Scaling for Eliciting Preferences in Healthcare pp. 301-317 Downloads
Jennifer A. Whitty and Ana Sofia Oliveira Gonçalves
Experience of Symptoms and Disease Impact in Patients with Adenomyosis pp. 319-328 Downloads
Linda M. Nelsen, William R. Lenderking, Robin Pokrzywinski, Zaneta Balantac, Libby Black, Shibani Pokras, Mary Beth Enslin, Melisa Cooper and Andrea S. Lukes
Mapping Quality of Life (EQ-5D) from DAPsA, Clinical DAPsA and HAQ in Psoriatic Arthritis pp. 329-340 Downloads
Tomas Mlcoch, Jan Tuzil, Liliana Sedova, Jiri Stolfa, Monika Urbanova, David Suchy, Andrea Smrzova, Jitka Jircikova, Tereza Hrnciarova, Karel Pavelka and Tomas Dolezal
Impact of Canagliflozin Treatment on Health-Related Quality of Life among People with Type 2 Diabetes Mellitus: A Pooled Analysis of Patient-Reported Outcomes from Randomized Controlled Trials pp. 341-352 Downloads
Jennifer Cai, Linda M. Delahanty, Sydney Akapame, April Slee and Shana Traina
Engagement of Canadian Patients with Rare Diseases and Their Families in the Lifecycle of Therapy: A Qualitative Study pp. 353-359 Downloads
Andrea Young, Devidas Menon, Jackie Street, Walla Al-Hertani and Tania Stafinski
Satisfaction with Subcutaneous Golimumab and its Auto-Injector among Rheumatoid Arthritis Patients with Inadequate Response to Adalimumab or Etanercept pp. 361-369 Downloads
Raphael J. Dehoratius, Lawrence H. Brent, Jeffrey R. Curtis, Lorie A Ellis and Kezhen L. Tang

Volume 11, issue 2, 2018

The Primacy of Patient-Centered Outcomes in Tracheostomy Care pp. 143-145 Downloads
Erin Ward, Vinciya Pandian and Michael J. Brenner
Symptom Monitoring in Pediatric Oncology Using Patient-Reported Outcomes: Why, How, and Where Next pp. 147-153 Downloads
Allison Barz Leahy, Chris Feudtner and Ethan Basch
Practical Considerations for Using Online Methods to Engage Patients in Guideline Development pp. 155-166 Downloads
Sean Grant, Glen S. Hazlewood, Holly L. Peay, Ann Lucas, Ian Coulter, Arlene Fink and Dmitry Khodyakov
Scale Heterogeneity in Healthcare Discrete Choice Experiments: A Primer pp. 167-173 Downloads
Caroline Vass, Stuart Wright, Michael Burton and Katherine Payne
A Systematic Review of Patient and Caregiver Experiences with a Tracheostomy pp. 175-191 Downloads
Ivana Nakarada-Kordic, Niamh Patterson, Jill Wrapson and Stephen D. Reay
Evaluation of Patient and Family Engagement Strategies to Improve Medication Safety pp. 193-206 Downloads
Julia M. Kim, Catalina Suarez-Cuervo, Zackary Berger, Joy Lee, Jessica Gayleard, Carol Rosenberg, Natalia Nagy, Kristina Weeks and Sydney Dy
Light Chain (AL) Amyloidosis: The Journey to Diagnosis pp. 207-216 Downloads
Kristen L. McCausland, Michelle K. White, Spencer D. Guthrie, Tiffany Quock, Muriel Finkel, Isabelle Lousada and Martha S. Bayliss
Patient Satisfaction with Care After Coronary Revascularization pp. 217-223 Downloads
Danielle L. Mosby, Matthew J. Manierre, Steve S. Martin, Paul Kolm, A. Sami Abuzaid, Claudine T. Jurkovitz, Daniel J. Elliott and William S. Weintraub
Patient-Reported Outcomes Following Ventral Hernia Repair: Designing a Qualitative Assessment Tool pp. 225-234 Downloads
Martin J. Carney, Kate E. Golden, Jason M. Weissler, Michael A. Lanni, Andrew R. Bauder, Brigid Cakouros, Fabiola Enriquez, Robyn Broach, Frances K. Barg, Marilyn M. Schapira and John P. Fischer
Assessing the Use of a Feedback Module to Model EQ-5D-5L Health States Values in Hong Kong pp. 235-247 Downloads
Eliza L. Y. Wong, Juan Manuel Ramos-Goñi, Annie W. L. Cheung, Amy Y. K. Wong and Oliver Rivero-Arias

Volume 11, issue 1, 2018

Making Patient Engagement a Reality pp. 1-8 Downloads
Daphnee S. Pushparajah
Challenges of Realising Patient-Centred Outcomes for Deaf Patients pp. 9-16 Downloads
Katherine D. Rogers, Emma Ferguson-Coleman and Alys Young
Patient Values and Preferences Surrounding Proton Pump Inhibitor Use: A Scoping Review pp. 17-28 Downloads
Wade Thompson, Cody Black, Vivian Welch, Barbara Farrell, Lise M. Bjerre and Peter Tugwell
Measuring Health-Related Quality of Life in Adolescent Populations: An Empirical Comparison of the CHU9D and the PedsQLTM 4.0 Short Form 15 pp. 29-37 Downloads
Karin Dam Petersen, Gang Chen, Christine Mpundu-Kaambwa, Katherine Stevens, John Brazier and Julie Ratcliffe
Predicting EuroQoL 5 Dimensions 5 Levels (EQ-5D-5L) Utilities from Older People’s Quality of Life Brief Questionnaire (OPQoL-Brief) Scores pp. 39-54 Downloads
Billingsley Kaambwa and Julie Ratcliffe
The Best of Both Worlds: An Example Mixed Methods Approach to Understand Men’s Preferences for the Treatment of Lower Urinary Tract Symptoms pp. 55-67 Downloads
Divine Ikenwilo, Sebastian Heidenreich, Mandy Ryan, Colette Mankowski, Jameel Nazir and Verity Watson
Development of a Novel Tool to Assess the Impact of Itching in Pediatric Cholestasis pp. 69-82 Downloads
Binita M. Kamath, Linda Abetz-Webb, Ciara Kennedy, Bonnie Hepburn, Martha Gauthier, Nathan Johnson, Sharon Medendorp, Alejandro Dorenbaum, Lora Todorova and Benjamin L. Shneider
Evaluating the European Health Literacy Survey Questionnaire in Patients with Stroke: A Latent Trait Analysis Using Rasch Modeling pp. 83-96 Downloads
Yi-Jing Huang, Cheng-Te Chen, Gong-Hong Lin, Tzu-Yi Wu, Sheng-Shiung Chen, Li-Fong Lin, Wen-Hsuan Hou and Ching-Lin Hsieh
Serious Choices: A Protocol for an Environmental Scan of Patient Decision Aids for Seriously Ill People at Risk of Death Facing Choices about Life-Sustaining Treatments pp. 97-106 Downloads
Catherine H. Saunders, Glyn Elwyn, Kathryn Kirkland and Marie-Anne Durand
Measuring Pain Catastrophizing and Pain-Related Self-Efficacy: Expert Panels, Focus Groups, and Cognitive Interviews pp. 107-117 Downloads
Dagmar Amtmann, Kendra Liljenquist, Alyssa Bamer, Fraser Bocell, Mark Jensen, Rosanne Wilson and Dennis Turk
Patient Evaluation of Satisfaction and Outcomes with an Autoinjector for Self-Administration of Subcutaneous Belimumab in Patients with Systemic Lupus Erythematosus pp. 119-129 Downloads
Ebony Dashiell-Aje, Gale Harding, Katie Pascoe, Jane DeVries, Pamela Berry and Sulabha Ramachandran
Does EGFR Mutation Type Influence Patient-Reported Outcomes in Patients with Advanced EGFR Mutation-Positive Non-Small-Cell Lung Cancer? Analysis of Two Large, Phase III Studies Comparing Afatinib with Chemotherapy (LUX-Lung 3 and LUX-Lung 6) pp. 131-141 Downloads
Yi-Long Wu, Vera Hirsh, Lecia V. Sequist, Cheng-Ping Hu, Jifeng Feng, Shun Lu, Yunchao Huang, Martin Schuler, Tony Mok, Nobuyuki Yamamoto, Kenneth O’Byrne, Sarayut L. Geater, Caicun Zhou, Dan Massey, Angela Märten, Juliane Lungershausen and James Chih-Hsin Yang
Page updated 2019-11-11