The Patient: Patient-Centered Outcomes Research

2008 - 2025

Current editor(s): Christopher I. Carswell

From:
Springer
International Academy of Health Preference Research
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Volume 11, issue 6, 2018

Patient-Consent Disconnects in Clinical Research pp. 577-579

Neal W. Dickert, JoAnne Brabson, Rodney J. Hunter and Michele Riedford

Putting Patients at the Centre of Healthcare: Progress and Challenges for Health Technology Assessments pp. 581-589

Karen M. Facey, Nicola Bedlington, Sarah Berglas, Neil Bertelsen, Ann N. V. Single and Victoria Thomas

Oh, the Places We’ll Go: Patient-Reported Outcomes and Electronic Health Records pp. 591-598

Sarah G. Gensheimer, Albert W. Wu and Claire F. Snyder

Colorectal Cancer Screening: Preferences, Past Behavior, and Future Intentions pp. 599-611

Carol Mansfield, Donatus U. Ekwueme, Florence K. L. Tangka, Derek S. Brown, Judith Lee Smith, Gery P. Guy, Chunyu Li and Brett Hauber

Women’s Preferences for Birthing Hospital in Denmark: A Discrete Choice Experiment pp. 613-624

Nasrin Tayyari Dehbarez, Morten Mørkbak, Dorte Gyrd-Hansen, Niels Uldbjerg and Rikke Søgaard

Spillover Effects of Maternal Chronic Disease on Children’s Quality of Life and Behaviors Among Low-Income Families pp. 625-635

Vivian Y. W. Guo, Carlos K. H. Wong, Rosa S. M. Wong, Esther Y. T. Yu, Patrick Ip and Cindy L. K. Lam

Unlocking the Value of Literature in Health Co-Design: Transforming Patient Experience Publications into a Creative and Accessible Card Tool pp. 637-648

Clare Villalba, Anjali Jaiprakash, Jared Donovan, Jonathan Roberts and Ross Crawford

Development of a Discrete Choice Experiment (DCE) Questionnaire to Understand Veterans’ Preferences for Tobacco Treatment in Primary Care pp. 649-663

David A. Katz, Kenda R. Stewart, Monica Paez, Mark W. Weg, Kathleen M. Grant, Christine Hamlin and Gary Gaeth

Converting Parkinson-Specific Scores into Health State Utilities to Assess Cost-Utility Analysis pp. 665-675

Gang Chen, Miguel A. Garcia-Gordillo, Daniel Collado-Mateo, Borja Pozo-Cruz, José C. Adsuar, José Manuel Cordero-Ferrera, Jose-Maria Abellan-Perpiñan and Fernando Ignacio Sánchez-Martínez

Volume 11, issue 5, 2018

Key Issues and Potential Solutions for Understanding Healthcare Preference Heterogeneity Free from Patient-Level Scale Confounds pp. 463-466

Catharina G. M. Groothuis-Oudshoorn, Terry N. Flynn, Hong Il Yoo, Jay Magidson and Mark Oppe

Symposium Title: Preference Evidence for Regulatory Decisions pp. 467-473

Juan Marcos Gonzalez, F. Reed Johnson, Bennett Levitan, Rebecca Noel and Holly Peay

Accounting for Scale Heterogeneity in Healthcare-Related Discrete Choice Experiments when Comparing Stated Preferences: A Systematic Review pp. 475-488

Stuart J. Wright, Caroline Vass, Gene Sim, Michael Burton, Denzil Fiebig and Katherine Payne

Themes that Determine Quality of Life in Patients with Peripheral Arterial Disease: A Systematic Review pp. 489-502

Ahmed Aber, Elizabeth Lumley, Patrick Phillips, Helen Buckley Woods, Georgina Jones and Jonathan Michaels

Patient Preferences for Managing Insomnia: A Discrete Choice Experiment pp. 503-514

Janet M. Y. Cheung, Delwyn J. Bartlett, Carol L. Armour, Bandana Saini and Tracey-Lea Laba

The Parker Model: Applying a Qualitative Three-Step Approach to Optimally Utilize Input from Stakeholders When Introducing New Device Technologies in the Management of Chronic Rheumatic Diseases pp. 515-526

Tanja S. Jørgensen, Marie Skougaard, Peter C. Taylor, Hans C. Asmussen, Anne Lee, Louise Klokker, Louise Svejstrup, Irina Mountian, Henrik Gudbergsen and Lars Erik Kristensen

Patient Perspective on Acute Intermittent Porphyria with Frequent Attacks: A Disease with Intermittent and Chronic Manifestations pp. 527-537

Amy Simon, Farrah Pompilus, William Querbes, Alex Wei, Sara Strzok, Craig Penz, Desiree Lyon Howe, Jessica R. Hungate, Jae B. Kim, Sonalee Agarwal and Patrick Marquis

Adaptation, Acceptance and Adaptive Preferences in Health and Capability Well-Being Measurement Amongst Those Approaching End of Life pp. 539-546

Joanna Coast, Cara Bailey, Rosanna Orlando, Kathy Armour, Rachel Perry, Louise Jones and Philip Kinghorn

Understanding How Chorea Affects Health-Related Quality of Life in Huntington Disease: An Online Survey of Patients and Caregivers in the United States pp. 547-559

Eileen Mack Thorley, Ravi G. Iyer, Paul Wicks, Chris Curran, Sanjay K. Gandhi, Victor Abler, Karen E. Anderson and Noelle E. Carlozzi

Patient-Reported Symptoms Over 48 Weeks Among Participants in Randomized, Double-Blind, Phase III Non-inferiority Trials of Adults with HIV on Co-formulated Bictegravir, Emtricitabine, and Tenofovir Alafenamide versus Co-formulated Abacavir, Dolutegravir, and Lamivudine pp. 561-573

David Wohl, Amanda Clarke, Franco Maggiolo, Will Garner, Marianne Laouri, Hal Martin and Erin Quirk

Volume 11, issue 4, 2018

Prior Authorization as a Potential Support of Patient-Centered Care pp. 371-375

Leah Rand and Zackary Berger

Quality of Life of Patients with Type 1 Diabetes Mellitus Using Insulin Analog Glargine Compared with NPH Insulin: A Systematic Review and Policy Implications pp. 377-389

Paulo H. R. F. Almeida, Thales B. C. Silva, Francisco de Assis Acurcio, Augusto A. Guerra Júnior, Vania E. Araújo, Leonardo M. Diniz, Brian Godman, Alessandra M. Almeida and Juliana Alvares

A Systematic Review of Discrete-Choice Experiments and Conjoint Analysis Studies in People with Multiple Sclerosis pp. 391-402

Edward J. D. Webb, David Meads, Ieva Eskyte, Natalie King, Naila Dracup, Jeremy Chataway, Helen L. Ford, Joachim Marti, Sue H. Pavitt, Klaus Schmierer and Ana Manzano

Stigma Perceived and Experienced by Adults with Type 1 Diabetes: Linguistic Adaptation and Psychometric Validation of the Danish Version of the Type 1 Diabetes Stigma Assessment Scale (DSAS-1 DK) pp. 403-412

Ulla Møller Hansen, Ingrid Willaing, Adriana D. Ventura, Kasper Olesen, Jane Speight and Jessica L. Browne

Patient and Family Advisory Councils (PFACs): Identifying Challenges and Solutions to Support Engagement in Research pp. 413-423

James D. Harrison, Wendy G. Anderson, Maureen Fagan, Edmondo Robinson, Jeffrey Schnipper, Gina Symczak, Catherine Hanson, Martha B. Carnie, Jim Banta, Sherry Chen, Jonathan Duong, Celene Wong and Andrew D. Auerbach

Assessing the Importance of Treatment Goals in Patients with Psoriasis: Analytic Hierarchy Process vs. Likert Scales pp. 425-437

Mandy Gutknecht, Marion Danner, Marthe-Lisa Schaarschmidt, Christian Gross and Matthias Augustin

Living with Merkel Cell Carcinoma (MCC): Development of a Conceptual Model of MCC Based on Patient Experiences pp. 439-449

Howard L. Kaufman, Carla Dias Barbosa, Isabelle Guillemin, Jérémy Lambert, Lisa Mahnke and Murtuza Bharmal

Building a Bridge Between Genetics and Outcomes Research: Application in Autism (The AutGO Study) pp. 451-462

Zohreh Talebizadeh and Ayten Shah

Volume 11, issue 3, 2018

Incorporating Quantitative Patient Preference Data into Healthcare Decision Making Processes: Is HTA Falling Behind? pp. 249-252

David Mott

Experience-Based Values: A Framework for Classifying Different Types of Experience in Health Valuation Research pp. 253-270

Patricia Cubi-Molla, Koonal Shah and Kristina Burström

Factors that Influence Treatment and Non-treatment Decision Making Among Individuals with Inflammatory Bowel Disease: An Integrative Review pp. 271-284

Kendra J. Kamp and Kelly Brittain

Evaluating Risk Tolerance from a Systematic Review of Preferences: The Case of Patients with Psoriasis pp. 285-300

Juan Marcos Gonzalez

A Systematic Review Comparing the Acceptability, Validity and Concordance of Discrete Choice Experiments and Best–Worst Scaling for Eliciting Preferences in Healthcare pp. 301-317

Jennifer A. Whitty and Ana Sofia Oliveira Gonçalves

Experience of Symptoms and Disease Impact in Patients with Adenomyosis pp. 319-328

Linda M. Nelsen, William R. Lenderking, Robin Pokrzywinski, Zaneta Balantac, Libby Black, Shibani Pokras, Mary Beth Enslin, Melisa Cooper and Andrea S. Lukes

Mapping Quality of Life (EQ-5D) from DAPsA, Clinical DAPsA and HAQ in Psoriatic Arthritis pp. 329-340

Tomas Mlcoch, Jan Tuzil, Liliana Sedova, Jiri Stolfa, Monika Urbanova, David Suchy, Andrea Smrzova, Jitka Jircikova, Tereza Hrnciarova, Karel Pavelka and Tomas Dolezal

Impact of Canagliflozin Treatment on Health-Related Quality of Life among People with Type 2 Diabetes Mellitus: A Pooled Analysis of Patient-Reported Outcomes from Randomized Controlled Trials pp. 341-352

Jennifer Cai, Linda M. Delahanty, Sydney Akapame, April Slee and Shana Traina

Engagement of Canadian Patients with Rare Diseases and Their Families in the Lifecycle of Therapy: A Qualitative Study pp. 353-359

Andrea Young, Devidas Menon, Jackie Street, Walla Al-Hertani and Tania Stafinski

Satisfaction with Subcutaneous Golimumab and its Auto-Injector among Rheumatoid Arthritis Patients with Inadequate Response to Adalimumab or Etanercept pp. 361-369

Raphael J. Dehoratius, Lawrence H. Brent, Jeffrey R. Curtis, Lorie A Ellis and Kezhen L. Tang

Volume 11, issue 2, 2018

The Primacy of Patient-Centered Outcomes in Tracheostomy Care pp. 143-145

Erin Ward, Vinciya Pandian and Michael J. Brenner

Symptom Monitoring in Pediatric Oncology Using Patient-Reported Outcomes: Why, How, and Where Next pp. 147-153

Allison Barz Leahy, Chris Feudtner and Ethan Basch

Practical Considerations for Using Online Methods to Engage Patients in Guideline Development pp. 155-166

Sean Grant, Glen S. Hazlewood, Holly L. Peay, Ann Lucas, Ian Coulter, Arlene Fink and Dmitry Khodyakov

Scale Heterogeneity in Healthcare Discrete Choice Experiments: A Primer pp. 167-173

Caroline Vass, Stuart Wright, Michael Burton and Katherine Payne

A Systematic Review of Patient and Caregiver Experiences with a Tracheostomy pp. 175-191

Ivana Nakarada-Kordic, Niamh Patterson, Jill Wrapson and Stephen D. Reay

Evaluation of Patient and Family Engagement Strategies to Improve Medication Safety pp. 193-206

Julia M. Kim, Catalina Suarez-Cuervo, Zackary Berger, Joy Lee, Jessica Gayleard, Carol Rosenberg, Natalia Nagy, Kristina Weeks and Sydney Dy

Light Chain (AL) Amyloidosis: The Journey to Diagnosis pp. 207-216

Kristen L. McCausland, Michelle K. White, Spencer D. Guthrie, Tiffany Quock, Muriel Finkel, Isabelle Lousada and Martha S. Bayliss

Patient Satisfaction with Care After Coronary Revascularization pp. 217-223

Danielle L. Mosby, Matthew J. Manierre, Steve S. Martin, Paul Kolm, A. Sami Abuzaid, Claudine T. Jurkovitz, Daniel J. Elliott and William S. Weintraub

Patient-Reported Outcomes Following Ventral Hernia Repair: Designing a Qualitative Assessment Tool pp. 225-234

Martin J. Carney, Kate E. Golden, Jason M. Weissler, Michael A. Lanni, Andrew R. Bauder, Brigid Cakouros, Fabiola Enriquez, Robyn Broach, Frances K. Barg, Marilyn M. Schapira and John P. Fischer

Assessing the Use of a Feedback Module to Model EQ-5D-5L Health States Values in Hong Kong pp. 235-247

Eliza L. Y. Wong, Juan Manuel Ramos-Goñi, Annie W. L. Cheung, Amy Y. K. Wong and Oliver Rivero-Arias

Volume 11, issue 1, 2018

Making Patient Engagement a Reality pp. 1-8

Daphnee S. Pushparajah

Challenges of Realising Patient-Centred Outcomes for Deaf Patients pp. 9-16

Katherine D. Rogers, Emma Ferguson-Coleman and Alys Young

Patient Values and Preferences Surrounding Proton Pump Inhibitor Use: A Scoping Review pp. 17-28

Wade Thompson, Cody Black, Vivian Welch, Barbara Farrell, Lise M. Bjerre and Peter Tugwell

Measuring Health-Related Quality of Life in Adolescent Populations: An Empirical Comparison of the CHU9D and the PedsQLTM 4.0 Short Form 15 pp. 29-37

Karin Dam Petersen, Gang Chen, Christine Mpundu-Kaambwa, Katherine Stevens, John Brazier and Julie Ratcliffe

Predicting EuroQoL 5 Dimensions 5 Levels (EQ-5D-5L) Utilities from Older People’s Quality of Life Brief Questionnaire (OPQoL-Brief) Scores pp. 39-54

Billingsley Kaambwa and Julie Ratcliffe

The Best of Both Worlds: An Example Mixed Methods Approach to Understand Men’s Preferences for the Treatment of Lower Urinary Tract Symptoms pp. 55-67

Divine Ikenwilo, Sebastian Heidenreich, Mandy Ryan, Colette Mankowski, Jameel Nazir and Verity Watson

Development of a Novel Tool to Assess the Impact of Itching in Pediatric Cholestasis pp. 69-82

Binita M. Kamath, Linda Abetz-Webb, Ciara Kennedy, Bonnie Hepburn, Martha Gauthier, Nathan Johnson, Sharon Medendorp, Alejandro Dorenbaum, Lora Todorova and Benjamin L. Shneider

Evaluating the European Health Literacy Survey Questionnaire in Patients with Stroke: A Latent Trait Analysis Using Rasch Modeling pp. 83-96

Yi-Jing Huang, Cheng-Te Chen, Gong-Hong Lin, Tzu-Yi Wu, Sheng-Shiung Chen, Li-Fong Lin, Wen-Hsuan Hou and Ching-Lin Hsieh

Serious Choices: A Protocol for an Environmental Scan of Patient Decision Aids for Seriously Ill People at Risk of Death Facing Choices about Life-Sustaining Treatments pp. 97-106

Catherine H. Saunders, Glyn Elwyn, Kathryn Kirkland and Marie-Anne Durand

Measuring Pain Catastrophizing and Pain-Related Self-Efficacy: Expert Panels, Focus Groups, and Cognitive Interviews pp. 107-117

Dagmar Amtmann, Kendra Liljenquist, Alyssa Bamer, Fraser Bocell, Mark Jensen, Rosanne Wilson and Dennis Turk

Patient Evaluation of Satisfaction and Outcomes with an Autoinjector for Self-Administration of Subcutaneous Belimumab in Patients with Systemic Lupus Erythematosus pp. 119-129

Ebony Dashiell-Aje, Gale Harding, Katie Pascoe, Jane DeVries, Pamela Berry and Sulabha Ramachandran

Does EGFR Mutation Type Influence Patient-Reported Outcomes in Patients with Advanced EGFR Mutation-Positive Non-Small-Cell Lung Cancer? Analysis of Two Large, Phase III Studies Comparing Afatinib with Chemotherapy (LUX-Lung 3 and LUX-Lung 6) pp. 131-141

Yi-Long Wu, Vera Hirsh, Lecia V. Sequist, Cheng-Ping Hu, Jifeng Feng, Shun Lu, Yunchao Huang, Martin Schuler, Tony Mok, Nobuyuki Yamamoto, Kenneth O’Byrne, Sarayut L. Geater, Caicun Zhou, Dan Massey, Angela Märten, Juliane Lungershausen and James Chih-Hsin Yang