The Patient: Patient-Centered Outcomes Research

2008 - 2025

Current editor(s): Christopher I. Carswell

From:
Springer
International Academy of Health Preference Research
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Volume 16, issue 6, 2023

Operationalizing the Chronic Care Model with Goal-Oriented Care pp. 569-578

Agnes Grudniewicz, Carolyn Steele Gray, Pauline Boeckxstaens, Jan Maeseneer and James Mold

Patient Preferences in Diagnostic Imaging: A Scoping Review pp. 579-591

Trey A. Baird, Davene R. Wright, Maria T. Britto, Ellen A. Lipstein, Andrew T. Trout and Shireen E. Hayatghaibi

Gauging Incentive Values and Expectations (G.I.V.E.) among Blood Donors for Nonmonetary Incentives: Developing a Preference Elicitation Instrument through Qualitative Approaches in Shandong, China pp. 593-606

Yu Wang, Peicong Zhai, Yue Zhang, Shan Jiang, Gang Chen and Shunping Li

Discrete-Choice Experiment to Understand the Preferences of Patients with Hormone-Sensitive Prostate Cancer in the USA, Canada, and the UK pp. 607-623

Juan Marcos Gonzalez, Arijit Ganguli, Alicia K. Morgans, Bertrand F. Tombal, Sebastien J. Hotte, Hiroyoshi Suzuki, Hemant Bhadauria, Mok Oh, Charles D. Scales, Matthew J. Wallace, Jui-Chen Yang and Daniel J. George

A Qualitative Exploration of Patient and Staff Experiences of the Receipt and Delivery of Specialist Weight Management Services in the UK pp. 625-640

Ross Watkins, Dawn Swancutt, Mia Alexander, Shokraneh Moghadam, Steve Perry, Sarah Dean, Rod Sheaff, Jonathan Pinkney, Mark Tarrant and Jenny Lloyd

Maximum Acceptable Risk Estimation Based on a Discrete Choice Experiment and a Probabilistic Threshold Technique pp. 641-653

Jorien Veldwijk, Rachael Lynn DiSantostefano, Ellen Janssen, Gwenda Simons, Matthias Englbrecht, Karin Schölin Bywall, Christine Radawski, Karim Raza, Brett Hauber and Marie Falahee

Face Validity of Four Preference-Weighted Quality-of-Life Measures in Residential Aged Care: A Think-Aloud Study pp. 655-666

Lidia Engel, Leona Kosowicz, Ekaterina Bogatyreva, Frances Batchelor, Nancy Devlin, Briony Dow, Andrew S. Gilbert, Brendan Mulhern, Tessa Peasgood and Rosalie Viney

Volume 16, issue 5, 2023

A New Framework for Co-Creating Telehealth for Cancer Care with the Patient Community pp. 415-423

Bonnie Addario, Violeta Astratinei, Louise Binder, Jan Geissler, Marcia K. Horn, Linda U. Krebs, Bryan Lewis, Kathy Oliver and Andrew Spiegel

Including Young Children in the Development and Testing of Patient Reported Outcome (PRO) Instruments: A Scoping Review of Children’s Involvement and Qualitative Methods pp. 425-456

Victoria Gale and Jill Carlton

Decision Making About Disease-Modifying Treatments for Relapsing-Remitting Multiple Sclerosis: Stated Preferences and Real-World Choices pp. 457-471

Edward J. D. Webb, David Meads, Ieva Eskytė, Helen L. Ford, Hilary L. Bekker, Jeremy Chataway, George Pepper, Joachim Marti, Yasmina Okan, Sue H. Pavitt, Klaus Schmierer and Ana Manzano

Design and Administration of Patient-Centred Outcome Measures: The Perspectives of Children and Young People with Life-Limiting or Life-Threatening Conditions and Their Family Members pp. 473-483

Lucy Coombes, Daney Harðardóttir, Debbie Braybrook, Anna Roach, Hannah Scott, Katherine Bristowe, Clare Ellis-Smith, Julia Downing, Myra Bluebond-Langner, Lorna K. Fraser, Fliss E. M. Murtagh and Richard Harding

Measurement Properties of the 15-Item Singapore Caregiver Quality of Life Scale (SCQOLS-15) in Family Caregivers of Patients with Heart Diseases pp. 485-495

Mihir Gandhi, Ru-San Tan, Shir Lynn Lim, Irene Teo, Grace Yang, Kai Lee Woo and Yin Bun Cheung

Preferences for Adjuvant Immunotherapy in Adults with Resected Stage III Melanoma—A Discrete Choice Experiment pp. 497-513

Ann Livingstone, Kirsten Howard, Alexander M. Menzies, Georgina V. Long, Martin R. Stockler and Rachael L. Morton

Developing a Conceptual Framework for Socioeconomic Impact Research in European Cancer Patients: A ‘Best-Fit’ Framework Synthesis pp. 515-536

Phu Duy Pham, Michael Schlander, Rachel Eckford, Karla Hernandez-villafuerte and Jasper Ubels

Preferences of People Living with HIV for Long-Acting Antiretroviral Treatment in Germany: Evidence from a Discrete Choice Experiment pp. 537-553

Martin Emmert, Stefan Rohrbacher, Jennifer Jahn, Katharina Fernando and Michael Lauerer

Exploring the Preferences of the Australian Public for Antibiotic Treatments: A Discrete Choice Experiment pp. 555-567

Chris Degeling, Trent Yarwood, Alberto Nettel-Aguirre, Judy Mullan, Nina Reynolds and Gang Chen

Volume 16, issue 4, 2023

Comment on: Taking the Shortcut: Simplifying Heuristics in Discrete Choice Experiments pp. 289-292

F. Reed Johnson

A Foundation for Patient-Centered Core Impact Sets: Key Learnings from Past and Existing Approaches pp. 293-300

Eleanor M. Perfetto, T. Rosie Love, Elisabeth M. Oehrlein, Silke C. Schoch and Suz Schrandt

Taking the Shortcut: Simplifying Heuristics in Discrete Choice Experiments pp. 301-315

Jorien Veldwijk, Stella Maria Marceta, Joffre Dan Swait, Stefan Adriaan Lipman and Esther Wilhelmina Bekker-Grob

Do Cash-For-Care Schemes Increase Care Users’ Experience of Empowerment? A Systematic Review pp. 317-341

Eva Pattyn, Paul Gemmel, Sophie Vandepitte and Jeroen Trybou

Correction to: Do Cash-For-Care Schemes Increase Care Users’ Experience of Empowerment? A Systematic Review pp. 343-343

Eva Pattyn, Paul Gemmel, Sophie Vandepitte and Jeroen Trybou

Individual Differences in the Patient Experience of Relapsing Multiple Sclerosis (RMS): A Multi-Country Qualitative Exploration of Drivers of Treatment Preferences Among People Living with RMS pp. 345-357

Sophi Tatlock, Kate Sully, Anjali Batish, Chelsea Finbow, William Neill, Carol Lines, Roisin Brennan, Nicholas Adlard and Tamara Backhouse

Patient-Centered Clinical Trial Design for Heart Failure Devices via Bayesian Decision Analysis pp. 359-369

Shomesh E. Chaudhuri, Phillip Adamson, Dean Bruhn-Ding, Zied Ben Chaouch, David Gebben, Liliana Rincon-Gonzalez, Barry Liden, Shelby D. Reed, Anindita Saha, Daniel Schaber, Kenneth Stein, Michelle E. Tarver and Andrew W. Lo

Cancer Survivor Preferences for Models of Breast Cancer Follow-Up Care: Selecting Attributes for Inclusion in a Discrete Choice Experiment pp. 371-383

Sanjeewa Kularatna, Michelle Allen, Ruvini M. Hettiarachchi, Fiona Crawford-Williams, Sameera Senanayake, David Brain, Nicolas H. Hart, Bogda Koczwara, Carolyn Ee and Raymond J. Chan

Physical Activity Preferences of People Living with Brain Injury: Formative Qualitative Research to Develop a Discrete Choice Experiment pp. 385-398

Abby Haynes, Kirsten Howard, Liam Johnson, Gavin Williams, Kelly Clanchy, Sean Tweedy, Adam Scheinberg, Sakina Chagpar, Belinda Wang, Gabrielle Vassallo, Rhys Ashpole, Catherine Sherrington and Leanne Hassett

Volume 16, issue 3, 2023

The Pogo-ization of Post-Pandemic Vaccine Policy pp. 179-181

Peter J. Pitts

So You Want to Build Your Disease’s First Online Patient Registry: An Educational Guide for Patient Organizations Based on US and European Experience pp. 183-199

Paul Wicks, Lindsey Wahlstrom-Edwards, Sam Fillingham, Andrea Downing and Elin Haf Davies

Systematic Review of the Effect of a One-Day Versus Seven-Day Recall Duration on Patient Reported Outcome Measures (PROMs) pp. 201-221

Tessa Peasgood, Julia M. Caruana and Clara Mukuria

The Impact of Video-Based Educational Materials with Voiceovers on Preferences for Glucose Monitoring Technology in Patients with Diabetes: A Randomised Study pp. 223-237

Ian P. Smith, Chiara L. Whichello, Esther W. Bekker-Grob, Maureen P. M. H. Rutten- van Mölken, Jorien Veldwijk and G. Ardine Wit

Comparing Outcomes of a Discrete Choice Experiment and Case 2 Best-Worst Scaling: An Application to Neuromuscular Disease Treatment pp. 239-253

Vikas Soekhai, Bas Donkers, Jennifer Viberg Johansson, Cecilia Jimenez-Moreno, Cathy Anne Pinto, G. Ardine Wit and Esther Bekker-Grob

Improving Outcome-Driven Care in Multiple Myeloma Using Patient-Reported Outcomes: A Qualitative Evaluation Study pp. 255-264

Christine Bennink, Marleen Mul, Marjolein Klift, Annemiek Broijl, Lidwine Tick, Eva Jongh, Mirjam Garvelink, Dorien Lobbezoo, Pieter Sonneveld and Jan Hazelzet

Focus Groups to Inform the Development of a Patient-Reported Outcome Measure (PROM) for Temporomandibular Joint Disorders (TMDs) pp. 265-276

Emily Elstad, Fraser D. Bocell, Tamika Cowans Owens, Dilani Logan, Emily Melluso, Claire Viscione, San Keller, Allen Chen, Jessica Weinberg, Veronica Sansing-Foster, Leah Royce, Phillip Woods, Andrew I. Steen, Adriana Ineveld, Michelle Reardon, Allen Cowley, John Kusiak, Deanne Clare, Terrie Cowley and Michelle E. Tarver

Ability and Willingness to Participate in Dementia Clinical Research: A Qualitative Study pp. 277-285

Nicole Bouranis, Sherril Gelmon and Allison Lindauer

Correction to: How Does the Public Evaluate Vaccines for Low‑Incidence, Severe‑Outcome Diseases? A General‑Population Choice Experiment pp. 287-287

F. Reed Johnson, Angelyn Fairchild, Dale Whittington, Amit K. Srivastava, Juan Marcos Gonzalez and Liping Huang

Volume 16, issue 2, 2023

Rethinking Patient Engagement in Cancer Research pp. 89-93

Anne L. R. Schuster, Heather Hampel, Electra D. Paskett and John F. P. Bridges

Long-Term Improvement in the Patient-Reported Outcomes of Rectal Bleeding, Stool Frequency, and Health-Related Quality of Life with Tofacitinib in the Ulcerative Colitis OCTAVE Clinical Program pp. 95-103

David P. Hudesman, Joana Torres, Leonardo Salese, John C. Woolcott, Rajiv Mundayat, Chinyu Su, Mahmoud H. Mosli and Jessica R. Allegretti

Patient-Reported Outcomes for Fully Vaccinated COVID-19 Patients Over 6 Weeks: The Experiences of Clinical Breakthrough Cases pp. 105-116

Keri Vartanian, Daniel Fish, Benjamin Gronowski, Natalie Kenton and Ari Robicsek

The Perception of Women in Rural and Remote Scotland About Intrapartum Care: A Qualitative Study pp. 117-125

Verity Watson, Helen Bryers, Nicolas Krucien, Seda Erdem, Mary Burnside and Hugo C. Woerden

Patients’ Preferences for Connected Insulin Pens: A Discrete Choice Experiment Among Patients with Type 1 and Type 2 Diabetes pp. 127-138

Jaein Seo, Sebastian Heidenreich, Esraa Aldalooj, Jiat Ling Poon, Erik Spaepen, Elizabeth L. Eby and Rachel S. Newson

How Does the Public Evaluate Vaccines for Low-Incidence, Severe-Outcome Diseases? A General-Population Choice Experiment pp. 139-151

F. Reed Johnson, Angelyn Fairchild, Dale Whittington, Amit K. Srivastava, Juan Marcos Gonzalez and Liping Huang

Patient Preferences in the Management of Hidradenitis Suppurativa: Results of a Multinational Discrete Choice Experiment in Europe pp. 153-164

Damon Willems, Eva-Lotta Hinzpeter, Hessel H. Zee, Christopher J. Sayed, John R. Ingram, Charlotte Beaudart, Silvia M. A. A. Evers and Mickael Hiligsmann

Patient Preferences for Attributes that Characterise Alternative Models of Care in Gastroenterology: A Discrete Choice Experiment pp. 165-177

Rumbidzai N. Mutsekwa, Katrina L. Campbell, Russell Canavan, Brendan Mulhern, Rebecca L. Angus and Joshua Byrnes

Volume 16, issue 1, 2023

FDA Guidance on Selecting, Developing, or Modifying Fit-for-Purpose Clinical Outcome Assessments: Old Wine in a New Bottle? pp. 3-5

Ari Gnanasakthy, Shanshan Qin and Lindsey Norcross

Improving Interpretation of Evidence Relating to Quality of Life in Health Technology Assessments of Rare Disease Treatments pp. 7-17

Elena Nicod, Andrew J Lloyd, Thomas Morel, Michela Meregaglia, Sheela Upadhyaya, Amanda Whittal, Karen Facey and Michael Drummond

Conducting Patient-Oriented Research in Low-Income and Middle-Income Countries: A Scoping Review pp. 19-29

Bukola Mary Ibitoye, Bernie Garrett, Manon Ranger and Jennifer Stinson

What Author Instructions Do Health Journals Provide for Writing Plain Language Summaries? A Scoping Review pp. 31-42

Karen M. Gainey, Jenna Smith, Kirsten J. McCaffery, Sharon Clifford and Danielle M. Muscat

Patient Preferences for Multi-Cancer Early Detection (MCED) Screening Tests pp. 43-56

Heather Gelhorn, Melissa M. Ross, Anuraag R. Kansal, Eric T. Fung, Michael V. Seiden, Nicolas Krucien and Karen C. Chung

Preferences for Treatments for Major Depressive Disorder: Formative Qualitative Research Using the Patient Experience pp. 57-66

Susan dosReis, Laura M. Bozzi, Beverly Butler, Richard Z. Xie, Richard H. Chapman, Jennifer Bright, Erica Malik and Julia F. Slejko

Constructing Health State Descriptions for Low-Risk Thyroid Cancer: Stakeholder Engagement and Formative Qualitative Research pp. 67-76

Erin G. Roth, Justin Kim, Julia F. Slejko, C. Daniel Mullins, Jennifer L. Doyle, David L. Levitt, Miguel Melendez, Kyle J. Fletke and Yinin Hu

Student-Athlete Preferences for Sexual Violence Reporting: A Discrete Choice Experiment pp. 77-88

Alice M. Ellyson, Avanti Adhia, Emily Kroshus and Davene R. Wright