The Patient: Patient-Centered Outcomes Research

2008 - 2026

Current editor(s): Christopher I. Carswell

From:
Springer
International Academy of Health Preference Research
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Volume 19, issue 5, 2026

Should Qualitative Researchers in Health and Medicine be Concerned About Replication? pp. 615-618

Patti Shih and Stacy M. Carter

Stated Preferences for Systemic Treatments for Prostate Cancer: A Targeted Review of the Discrete-Choice Experiment Literature pp. 619-635

Neeraj Agarwal, Brett Hauber, Agnes Hong, Joshua Coulter, David Russell, Michael Ryan, Savanna Darnell, Verity Watson and Sean P. Collins

Incorporating the Patient Voice into Attribute and Level Selection for a Preference Study: A Qualitative Study in Non-Muscle Invasive Bladder Cancer pp. 637-654

Brad Mason, Anthony Eccleston, Lara Ayala-Nunes, Brett Hauber, Adam Gater, Joshua Coulter, Pam Hallworth, Allison Thompson, Bethany Bell, Jane Chang, Julia Brinkmann, Joseph C. Cappelleri, Stephanie Chisolm and Raj Satkunasivam

Patient Preferences Towards Plain Language Resources During their Multiple Sclerosis Journey: A Qualitative Interview Study pp. 655-671

Avishek Pal, Bernice Simone Elger, Samuel S. Allemann and Tenzin Wangmo

Recalibration: Exploring the Impact of Elexacaftor/Tezacaftor/Ivacaftor on Self-Concept for Adults with Cystic Fibrosis pp. 673-686

Maggie Harrigan, Melanie Jessup, Kellie Bennett, Eleni Bacopanos, Phoebe Waters and Siobhain Mulrennan

Preferences for Video Consultations in Family Health Stations: A Discrete Choice Experiment Among Ultra-Orthodox Jewish Women pp. 687-698

Irit Chudner, Anat Drach-Zahavy, Tamar Almor, Batya Madjar, Lea Gelman and Sonia Habib

Experiences of Migraine and Erenumab Treatment in Japan: Qualitative Interviews with Clinical Trial Participants pp. 699-709

Carla Dias-Barbosa, Hisaka Igarashi, Ashley Duenas, Asha Hareendran, Shigekazu Kitamura, Shigeya Tanaka, Naoko Sanno, Hikaru Doi, Tsutomu Nagamitsu, Yoshihisa Tatsuoka, Yasuhiko Matsumori, Miki Hasebe and Takao Takeshima

Patients’ Preferences for Surgical Procedures in Hidradenitis Suppurativa: A Discrete Choice Experiment pp. 711-724

Katja C. Heinz, Emily G. Summers, Charlotte Beaudart, Teja Mallela, Stephanie Goldberg, Melonie Brown, Keven M. Brown, Christopher John Sayed and Mickael Hiligsmann

Severity or Incidence: Labeling Side-Effect Attributes in Discrete Choice Experiments pp. 725-739

Stella Maria Marceta, Esther Wilhelmina de Bekker-Grob, Tom Van Ourti and Jorien Veldwijk

Treatment Preferences in Adult Patients with Type 2 and Type 3 Spinal Muscular Atrophy: Evidence from a Discrete Choice Experiment in China pp. 741-751

Jiaqi Yuan, Shunping Li, Lei Dou, Huanping Xing, Liyong Lu and Shan Jiang

Volume 19, issue 4, 2026

Putting Patient Voices at the Heart of Healthcare Decisions: The UNIFIED Public-Private Project pp. 497-500

Esther W. de Bekker-Grob, Jorien Veldwijk, Bianca Pop, Josh Coulter, Brett Hauber and the UNIFIED Consortium

Patient Preferences Regarding Menopausal Symptoms and Treatments: A Systematic Review of Quantitative Stated-Preference Studies pp. 501-517

Lucie Raskin, Emma Boretti, Jonathan Douxfils and Charlotte Beaudart

Understanding Patient Preferences for Medication Process Attributes: A Systematic Literature Review pp. 519-532

Jessica Roydhouse, Glen J. Henson, Nizam Abdu, Thi Thu Ngan Dinh, Thi Ly Tran, Brendan Mulhern and Julie A. Campbell

Public Preferences and Willingness to Pay for a Multidisciplinary Colorectal and Pelvic Reconstruction Service pp. 533-543

Tianxin Pan, Misel Trajanovska, Yan Meng, Stephanie Best, Sebastian K. King and Ilias Goranitis

Correction: Public Preferences and Willingness to Pay for a Multidisciplinary Colorectal and Pelvic Reconstruction Service pp. 545-545

Tianxin Pan, Misel Trajanovska, Yan Meng, Stephanie Best, Sebastian K. King and Ilias Goranitis

Societal Preferences, Values and Priorities for Genomic Testing for Atrial Fibrillation: Evidence from Two Discrete Choice Experiments pp. 547-559

Cun Liu, Stephanie Best, Diane Fatkin and Ilias Goranitis

Patient Preferences for Hypertension Treatment Outcomes: A Quantitative Field Study Using the Analytic Hierarchy Process pp. 561-572

Stefanie Gröls, Andrea Icks, Georg Wolff, Sven Meuth and Charalabos-Markos Dintsios

Chinese Patient Preferences and Trade-Offs for Therapy-Related Attributes of Anti-Vascular Endothelial Growth Factor Agents in Diabetic Macular Edema and Neovascular Age-Related Macular Degeneration: A Discrete Choice Experiment pp. 573-585

Hanfei Wang, Jingbo Zhang, Yiwei Li, Yusi Suo, Han Wang, Zhien Gu, Hao Yan, Chao Wang, Lei Shao, Wenbin Wei and Xuejing Jin

Preferences for Healthcare Delivery in Amyotrophic Lateral Sclerosis (ALS): A Survey of Patients and Caregivers in the United States pp. 587-600

Ilene L. Hollin, Hristelina Ilieva, Piera Pasinelli, Laura Chisholm and Terry Heiman-Patterson

Patients’ Experiences of Obstructive Sleep Apnea and Tirzepatide Treatment: An Exit Interview Study pp. 601-614

Shraddha Shinde, Chisom Kanu, Oralee J. Varnado, Jo Bednarik, Ellen B. Dennehy, Carla Dias-Barbosa and Natalie Taylor

Volume 19, issue 3, 2026

Focus Group-Based Cognitive Interviews: A Valid Method in the Development and Evaluation of Clinical Outcome Assessment Measures? pp. 353-354

Keith Meadows

Patient-Reported Outcomes in Early-Phase Oncology Clinical Trials: A Stepping Stone to a Patient-Centered Drug Development pp. 355-359

Frederic Fiteni, Adeline Meilhoc, Olivier Blin and Estelle Haenel

Patient Preferences in Anticoagulation Treatment: A Review of Discrete Choice Experiments pp. 361-384

Ilja M. Brugman, Linda van Eikenhorst, Caroline Schlinkert and Cordula Wagner

Beyond Numbers: Uses and Value of In-Trial Interview Data for Regulatory and Health Technology Assessment (HTA) Decision Making pp. 385-405

Carla Dias-Barbosa, Miriam Kimel, Paulina Rolska-Wojcik, Karen Bailey, Olabimpe R. Eseyin and Mona L. Martin

Feasibility of Routine Quality-of-Life Measurement in Residential Aged Care: Results from a Pilot Study in Australia pp. 407-421

Lidia Engel, Nancy Devlin, Briony Dow, Andrew Gilbert, Brendan Mulhern, Tessa Peasgood, Rosalie Viney and Frances Batchelor

Women's Preferences in Early Pregnancy Loss Management: A Focus on Psychological Considerations Using the Analytic Hierarchy Process pp. 423-434

Mirjam E. C. Peters, Andrea Icks and Charalabos-Markos Dintsios

Formative Research in the Codesign of a Discrete Choice Experiment with Patients with Myasthenia Gravis: Selecting and Refining Attributes, Levels and Scenarios pp. 435-448

Gozde Aydin, Xin Zhang, Dennis Petrie, Anneke Van der Walt, Stephen Reddel, Katherine Buzzard, Natalie Windle, Susan White, Catherine Bergin and Laura Fanning

Patient Preferences for Neuromyelitis Optica Spectrum Disorder (NMOSD) Treatments: Results from a Discrete Choice Experiment Study in the USA pp. 449-463

Justin R. Abbatemarco, Adrian Kielhorn, Jeffrey C. Yu, Sami Fam, Kelley Myers, Christine M. Poulos and Devon S. Conway

What Is Important to Patients? A Mixed Methods Study to Understand Patient Experience Commonalities Across Three Conditions pp. 465-480

Kayleigh R. Majercak, Eleanor M. Perfetto and C. Daniel Mullins

Patient Preferences for Long-Term Prophylactic Treatment in Hereditary Angioedema: A Discrete-Choice Experiment pp. 481-495

Kathleen F. Villa, Carol Mansfield, Aaron Yarlas, James A. Ruggles, Laura Bordone, Cannon Kent and Caroline M. Vass

Volume 19, issue 2, 2026

The Patient Voice in Atopic Eczema Guidelines: How Do We Make it Standard Practice? pp. 163-171

Bernd Arents, Korey Capozza, Ncoza C. Dlova, Melanie Funk, Mark J. A. Koh and Rachel Ogola

Strategies to Translate PROMs to Linguistically Diverse and Lesser-Spoken Languages: Lessons from Wales pp. 173-179

Robert I. Palmer, Hawys Waddington and Kathleen Withers

Public Preferences for Emerging Cancer Screening Modalities: A Systematic Review of Discrete Choice Experiments pp. 181-196

Chee Ern Har, Qi Gao, Wenjia Chen and Yi Wang

A Systematic Review of Patient-Reported Measures for Individuals Who Underwent Genetic Testing for Heritable Cancer pp. 197-220

Kelsie Raspin, Daisy Nowakowski, Joanne L. Dickinson and Jessica Roydhouse

Patients as Partners in Sickle Cell Disease Research in Africa: A Framework for Equitable Patient-Engaged Health Research pp. 221-230

Nchangwi Syntia Munung, Lawrence Osei-Tutu, Arafa Salim Said, Hilda Tutuba, Cynthia Changafu, Solange Mela, Alieu Badara W. Sambou, Victoria Nembaware, Emmanuel Chide Okocha, Patience Kuona, Leon Tshilolo, Maya Sabatello, Marsha Treadwell, Julie Makani and Ambroise Wonkam

PAIRED: Quantitative and Qualitative PAtIent-Reported Experiences and perceiveD Benefit of Treatment with Dolutegravir/Lamivudine in the United States pp. 231-244

Jihad Slim, Andrew P. Brogan, Gavin Harper, Katie Mycock, Abigail McMillan, Deanna Merrill and Gustavo Verdier

Eliciting Patient Preferences for the Hospital at Home Programme in Singapore; A Discrete Choice Experiment pp. 245-254

Sanjeewa Kularatna, Low Lian Leng, Michelle Tan Woei Jen, Tang Woon Hoe, Tan Wee Boon, Lai Yi Feng, Nicholas Graves and Sameera Senanayake

Who Prefers Death to Life in Composite Time Trade-off Interviews, and Why? A Mixed-Methods Study among Asians in Singapore pp. 255-267

Ling Jie Cheng, Annushiah Vasan Thakumar, Le Ann Chen, Rachel Lee-Yin Tan, Meixia Liao and Nan Luo

How Important is Healthcare-Contact Time to Systemic Treatment Decision-Making in Advanced Gastrointestinal Cancers: Developing Attributes to Include in a Discrete Choice Experiment pp. 269-284

Samuel X. Stevens, Ella El-Katateny, Isaac Yeboah Addo, Deborah Street, Christopher Booth, Joanne Shaw, Janette L. Vardy and Richard De Abreu Lourenco

ePROMs are Best Used Alongside ‘A High-Quality Conversation’ as Part of a Therapeutic Relationship. A Qualitative Study of Children with Life-Altering Skin Conditions pp. 285-296

Zephanie Tyack, Megan Simons, Emma Hartshorn, Roy M. Kimble and Jessica Killey

Factors influencing Patient Preferences for BRCA Testing and Adjuvant Therapy in HER2-Negative Early Breast Cancer in the United States: Best–Worst Scaling and Discrete Choice Experiment pp. 297-312

Kathryn Mishkin, Qixin Li, Jagadeswara Rao Earla, Jaime A. Mejia, Kim M. Hirshfield, Kathryn Krupsky, Josh Lankin, Kathleen Beusterien, Emily Mulvihill, Ryan Honomichl, Alexandra Gordon and Xiaoqing Xu

Reducing Primary Healthcare Bypass Behaviour: A Discrete Choice Experiment Study Exploring the Preferences for Primary Eye Care Services in Rural Xinjiang pp. 313-328

Xiaodong Dong, Junling Zhao, Ziyin Zhao, Can Su and Xiaochen Ma

Eliciting Patient-Centric Value Parameters: A National Best-Worst Scaling Profile Case Survey for Second-Line Antidiabetic Drugs in China pp. 329-341

Dai Lian, Jing Liu, Yan Wei, Yi Yang, Yanfeng Ren, Shiyi Bao, Liu Liu, Shimeng Liu and Yingyao Chen

Patient Insights on Acne Hyperpigmentation, Trifarotene, and Skincare: 6-Month, LEAP Phase 4 Qualitative Exit Interview Findings pp. 343-352

Carla Dias-Barbosa, Natalie Taylor, Kevin Chan, Jean Philippe York, Jorge Puelles and Rajeev Chavda

Volume 19, issue 1, 2026

Using a Timeline Activity in Virtual Concept Elicitation Interviews with Youth: Methods and Lessons Learned from an Interpretive Descriptive Study to Develop a Patient-Reported Outcome Measure (GENDER-Q Youth) pp. 5-20

Shelby L. Kennedy, Susan M. Jack, Natasha Johnson, Jennifer Couturier, Charlene Rae and Anne F. Klassen

Evaluation Tools for Patient and Public Involvement (PPI) in Health Research: A Scoping Review pp. 21-49

Signe Nissen, Anne Wettergren Karlsson and Birgitte Nørgaard

A Systematic Literature Review of Preference Studies in Migraine Treatments pp. 51-68

Divya Mohan, Harrison Clarke, Natasha Ramachandran and Jaein Seo

A Qualitative Study on Patient Experience with Signs, Symptoms, and Daily Impacts of Immune Thrombocytopenia pp. 69-82

Waleed Ghanima, Nichola Cooper, Sylvie Bozzi, Ahmed Daak, Imene Gouia, Matias Cordoba, Javier Barrio, Michael Kostikas, Owen Cooper and Howard Liebman

Subcutaneous Infusion of Benzathine Penicillin G Is Acceptable and Preferred Over Intramuscular Injections for Syphilis in Western Australian Sexual Health Clinic Attendees: A Mixed Methods Sub-study pp. 83-92

Shakayla L. Walley, Jane Oliver, Stephanie L. Enkel, Alice Kupara, Simon Swallow, Joseph Cotter, Gerard F. Hoyne, Thel K. Hla and Laurens Manning

Patient-Reported Side Effect Bother: Understanding the Value of the Baseline Report pp. 93-101

Jessica Roydhouse, Monique Breslin, Anne Zola, Ethan Basch, Melanie Calvert, David Cella, Mary Lou Smith, Gita Thanarajasingam and John Devin Peipert

Do Patients Think it’s Worth Waiting for a Kidney? Evidence from a Discrete-Choice Experiment pp. 103-111

Ching-Heng Wu, Shelby D Reed, Jui-Chen Yang, Sanjay Mehrotra, Lisa McElroy and Juan Marcos Gonzalez

Practical considerations towards the collection of patient reported outcome data among hematopoietic cell transplant recipients pp. 113-120

Gemma Pugh, Christina Yiallouridou, Dawn Hart, Rachel Miller and Robert Danby

Which Factors Influence Decisions to Withdraw from Eculizumab: A Qualitative Study of Patients Diagnosed with aHUS pp. 121-129

Jan Lecouturier and Neil Sheerin

Attribute Development and Level Selection for a Discrete Choice Experiment to Elicit Care Preferences of Older Adults and Informal Caregivers Aging in Place in The Netherlands pp. 131-144

Isabelle Vullings, Luis Pilli, Marie-Julie C. H. Russchen, Nanon H. M. Labrie, Joffre Swait, Özgül Uysal-Bozkir, Joost Wammes and Janet L. MacNeil Vroomen

Exploring the Impact of a Context-Adapted Decision Aid and Online Training About Shared Decision Making About Goals of Care with Elderly Patients in the Intensive Care Unit: A Mixed-Methods Study pp. 145-160

Ariane Plaisance, Julien Turgeon, Lucas Gomes Souza, France Légaré, Stéphane Turcotte, Nathalie Germain, Tommy Jean, Maude Dionne, Félix Antoine Fortier, Patrick Plante, Diane Tapp, Véronique Gélinas, Emmanuelle Bélanger, Mark H. Ebell, Christian Chabot, Tom H. van de Belt, Alexis F. Turgeon and Patrick M. Archambault

Correction: Preferences for Neurodevelopmental Follow-Up Care for Children: A Discrete Choice Experiment pp. 161-161

Pakhi Sharma, Sanjeewa Kularatna, Bridget Abell, Steven M. McPhail and Sameera Senanayake