The Patient: Patient-Centered Outcomes Research

2008 - 2025

Current editor(s): Christopher I. Carswell

From:
Springer
International Academy of Health Preference Research
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Volume 9, issue 6, 2016

Using PROMs in Healthcare: Who Should Be in the Driving Seat—Policy Makers, Health Professionals, Methodologists or Patients? pp. 495-498

Kirstie L. Haywood, Roger Wilson, Sophie Staniszewska and Sam Salek

What Do Users of Generic Medicines Think of Them? A Systematic Review of Consumers’ and Patients’ Perceptions of, and Experiences with, Generic Medicines pp. 499-510

Suzanne S. Dunne

Factors in Patient Empowerment: A Survey of an Online Patient Research Network pp. 511-523

Emil Chiauzzi, Pronabesh DasMahapatra, Elisenda Cochin, Mikele Bunce, Raya Khoury and Purav Dave

Patients’ Preferences for Genomic Diagnostic Testing in Chronic Lymphocytic Leukaemia: A Discrete Choice Experiment pp. 525-536

James Buchanan, Sarah Wordsworth and Anna Schuh

A Cross-Sectional Study of the Impact of Spasticity on Daily Activities in Multiple Sclerosis pp. 537-546

Francois Bethoux and Ruth Ann Marrie

Patients’ Early Post-Operative Experiences with Lung Transplantation: A Longitudinal Qualitative Study pp. 547-557

Annina Seiler, Richard Klaghofer, Natalie Drabe, Chantal Martin-Soelch, Vera Hinderling-Baertschi, Lutz Goetzmann, Annette Boehler, Stefan Buechi and Josef Jenewein

Treatment Burden and Chronic Illness: Who is at Most Risk? pp. 559-569

Adem Sav, Jennifer A. Whitty, Sara S. McMillan, Elizabeth Kendall, Fiona Kelly, Michelle A. King and Amanda J. Wheeler

Translating Evidence to Facilitate Shared Decision Making: Development and Usability of a Consult Decision Aid Prototype pp. 571-582

Dawn Stacey, France Légaré, Anne Lyddiatt, Anik M. C. Giguere, Manosila Yoganathan, Anton Saarimaki, Jordi Pardo Pardo, Tamara Rader and Peter Tugwell

A Case Study Investigation into the Use of Multi-compartment Compliance Aids in Older People Resident in Very Sheltered Housing pp. 583-590

Katie MacLure, Joan MacLeod, Katrina Forbes-McKay, Vibhu Paudyal, Scott Cunningham, Alison Strath, Rory Lynch and Derek Stewart

Volume 9, issue 5, 2016

The Patient Voice: At the Intersection of a US Regulatory Revolution pp. 373-377

Peter J. Pitts

Instrument Development in Choice Experiments. Commentary on: “Applying a Framework for Instrument Development of a Choice Experiment to Measure Treatment Preferences in Type 2 Diabetes” pp. 379-381

Eve Wittenberg

Engaging Older Adults in Health Care Decision-Making: A Realist Synthesis pp. 383-393

Jacobi Elliott, Heather McNeil, Jessica Ashbourne, Kelsey Huson, Veronique Boscart and Paul Stolee

Development of a Symptom-Based Patient-Reported Outcome Instrument for Functional Dyspepsia: A Preliminary Conceptual Model and an Evaluation of the Adequacy of Existing Instruments pp. 409-418

Fiona Taylor, David S. Reasner, Robyn T. Carson, Linda S. Deal, Catherine Foley, Ramon Iovin, J. Jason Lundy, Farrah Pompilus, Alan L. Shields and Debra G. Silberg

Cognitive Testing of an Electronic Version of the Faces Pain Scale-Revised with Pediatric and Adolescent Sickle Cell Patients pp. 433-443

Neehar Gupta, April N. Naegeli, Diane M. Turner-Bowker, Emuella M. Flood, Lori Ellen Heath, Shelley M. Mays and Carlton Dampier

Support for Living a Meaningful Life with Osteoarthritis: A Patient-to-Patient Research Study pp. 457-464

Jean Louise Miller, Sylvia Ruth Teare, Nancy Marlett, Svetlana Shklarov and Deborah Anne Marshall

A Framework for Instrument Development of a Choice Experiment: An Application to Type 2 Diabetes pp. 465-479

Ellen M. Janssen, Jodi B. Segal and John F. P. Bridges

How Well Can Analytic Hierarchy Process be Used to Elicit Individual Preferences? Insights from a Survey in Patients Suffering from Age-Related Macular Degeneration pp. 481-492

Marion Danner, Vera Vennedey, Mickaël Hiligsmann, Sascha Fauser, Christian Gross and Stephanie Stock

Volume 9, issue 4, 2016

A Systematic Review of Patients’ Perspectives on the Subcutaneous Route of Medication Administration pp. 281-292

Colin H. Ridyard, Dalia M. M. Dawoud, Lorna V. Tuersley and Dyfrig A. Hughes

A Comparison of Methods for Capturing Patient Preferences for Delivery of Mental Health Services to Low-Income Hispanics Engaged in Primary Care pp. 293-301

Patricia M. Herman, Maia Ingram, Charles E. Cunningham, Heather Rimas, Lucy Murrieta, Kenneth Schachter, Jill Guernsey Zapien and Scott C. Carvajal

Understanding the Experience of Age-Related Vestibular Loss in Older Individuals: A Qualitative Study pp. 303-309

Aisha Harun, Carol Li, John F. P. Bridges and Yuri Agrawal

A Head-to-Head Comparison of the EQ-5D-5L and AQoL-8D Multi-Attribute Utility Instruments in Patients Who Have Previously Undergone Bariatric Surgery pp. 311-322

Julie Campbell, Andrew J. Palmer, Alison Venn, Melanie Sharman, Petr Otahal and Amanda Neil

Patient, Caregiver, and Nurse Preferences for Treatments for Bone Metastases from Solid Tumors pp. 323-333

Yi Qian, Jorge Arellano, A. Brett Hauber, Ateesha F. Mohamed, Juan Marcos Gonzalez, Guy Hechmati, Francesca Gatta, Stacey Harrelson and Cynthia Campbell-Baird

Psychometric Evaluation of a New Patient-Reported Outcome (PRO) Symptom Diary for Varicose Veins: VVSymQ® Instrument pp. 335-348

David D. I. Wright, Jean Paty, Diane M. Turner-Bowker and Andrew Bradbury

Perceived Barriers and Potential Strategies to Improve Self-Management Among Adults with Type 2 Diabetes: A Community-Engaged Research Approach pp. 349-358

Tanjala S. Purnell, Thomas J. Lynch, Lee Bone, Jodi B. Segal, Crystal Evans, Daniel R. Longo and John F. P. Bridges

Satisfaction, Adherence and Health-Related Quality of Life with Transdermal Buprenorphine Compared with Oral Opioid Medications in the Usual Care of Osteoarthritis Pain pp. 359-371

Philip G. Conaghan, Michael Serpell, Paula McSkimming, Rod Junor and Sara Dickerson

Volume 9, issue 3, 2016

Not Surprising: Patients Not Engaged and Not Using Public Healthcare Quality Information pp. 191-192

Durhane Wong-Rieger

Meeting the Challenges of Intervention Research in Health Science: An Argument for a Multimethod Research Approach pp. 193-200

Helle Ploug Hansen and Tine Tjørnhøj-Thomsen

Completing a Questionnaire at Home Prior to Needs Assessment in General Practice: A Qualitative Study of Cancer Patients’ Experience pp. 223-230

Susanne Thayssen, Dorte Gilså Hansen, Jens Søndergaard, Mette Terp Høybye, Palle Mark Christensen and Helle Ploug Hansen

A Qualitative Study of Vulnerable Patient Views of Type 2 Diabetes Consumer Reports pp. 231-240

Daniel R. Longo, Benjamin F. Crabtree, Maria B. Pellerano, Jenna Howard, Barry Saver, Edward L. Hannan, Justin Lee, Michael T. Lundberg and Roy Sabo

Variation in Treatment Priorities for Chronic Hepatitis C: A Latent Class Analysis pp. 241-249

Liana Fraenkel, Joseph Anthony Lim, Guadalupe Garcia-Tsao, Valerie Reyna, Alexander Monto and John F. P. Bridges

Validation of the Chinese Version of the Quality of Recovery-15 Score and Its Comparison with the Post-Operative Quality Recovery Scale pp. 251-259

Xue-Shan Bu, Jing Zhang and Yun-Xia Zuo

Feasibility of Using Qualitative Interviews to Explore Patients’ Treatment Goals: Experience from Dermatology pp. 261-269

Christine Blome, Kathrin Usslar and Matthias Augustin

Patient Involvement in the Design of a Patient-Centered Clinical Trial to Promote Adherence to Supplemental Oxygen Therapy in COPD pp. 271-279

Kristen E. Holm, Richard Casaburi, Scott Cerreta, Hélène A. Gussin, Julian Husbands, Janos Porszasz, Valentin Prieto-Centurion, Robert A. Sandhaus, Jamie L. Sullivan, Linda J. Walsh and Jerry A. Krishnan

Volume 9, issue 1, 2016

Developing Guidance on Ethics for Patient Groups Collecting and Reporting Patient Information for Health Technology Assessments pp. 1-4

Ann N. V. Single, Anna M. Scott and Janet Wale

Developing Guidance on Ethics for Patient Groups Collecting and Reporting Patient Information for Health Technology Assessments pp. 1-4

Ann Single, Anna Scott and Janet Wale

How Well Do the Generic Multi-attribute Utility Instruments Incorporate Patient and Public Views Into Their Descriptive Systems? pp. 5-13

Katherine Stevens

The Benefits and Risks of Being a Standardized Patient: A Narrative Review of the Literature pp. 15-25

Joseph Plaksin, Joseph Nicholson, Sarita Kundrod, Sondra Zabar, Adina Kalet and Lisa Altshuler

Validation of a Patient Satisfaction Scale in Patients Undergoing Bowel Preparation Prior to Colonoscopy pp. 27-34

Hind T. Hatoum, Swu-Jane Lin, Raymond E. Joseph and David N. Dahdal

Validation of a Patient Satisfaction Scale in Patients Undergoing Bowel Preparation Prior to Colonoscopy pp. 27-34

Hind Hatoum, Swu-Jane Lin, Raymond Joseph and David Dahdal

Assessment of Transdermal Buprenorphine Patches for the Treatment of Chronic Pain in a UK Observational Study pp. 35-46

Mick Serpell, Shiva Tripathi, Sabine Scherzinger, Sònia Rojas-Farreras, Alexander Oksche and Margaret Wilson

Assessment of Transdermal Buprenorphine Patches for the Treatment of Chronic Pain in a UK Observational Study pp. 35-46

Mick Serpell, Shiva Tripathi, Sabine Scherzinger, Sònia Rojas-Farreras, Alexander Oksche and Margaret Wilson

Focus Groups in Elderly Ophthalmologic Patients: Setting the Stage for Quantitative Preference Elicitation pp. 47-57

Marion Danner, Vera Vennedey, Mickaël Hiligsmann, Sascha Fauser and Stephanie Stock

Preferences and Stated Adherence for Antibiotic Treatment of Cystic Fibrosis Pseudomonas Infections pp. 59-67

Ateesha Mohamed, F. Johnson, Maria-Magdalena Balp and Frederico Calado

Depressive Symptoms, Cardiac Anxiety, and Fear of Body Sensations in Patients with Non-Cardiac Chest Pain, and Their Relation to Healthcare-Seeking Behavior: A Cross-Sectional Study pp. 69-77

Ghassan Mourad, Anna Strömberg, Peter Johansson and Tiny Jaarsma

Novel Statistical Approach to Determine Inflammatory Bowel Disease: Patients’ Perspectives on Shared Decision Making pp. 79-89

Corey Siegel, Jennifer Lofland, Ahmad Naim, Jan Gollins, Danielle Walls, Laura Rudder and Chuck Reynolds

Volume 8, issue 6, 2015

Is Shared Decision Making a Utopian Dream or an Achievable Goal? pp. 471-476

Louisa Blair and France Légaré

Ethics Review of Survey Research: A Mandatory Requirement for Publication? pp. 477-482

Danielle Whicher and Albert Wu

Systematic Review of Patients’ and Parents’ Preferences for ADHD Treatment Options and Processes of Care pp. 483-497

Nicole Schatz, Gregory Fabiano, Charles Cunningham, Susan dosReis, Daniel Waschbusch, Stephanie Jerome, Kellina Lupas and Karen Morris

Balance Sheets Versus Decision Dashboards to Support Patient Treatment Choices: A Comparative Analysis pp. 499-505

James Dolan and Peter Veazie

Assessing the Impact of Caring for a Person with Schizophrenia: Development of the Schizophrenia Caregiver Questionnaire pp. 507-520

Adam Gater, Diana Rofail, Chris Marshall, Chloe Tolley, Linda Abetz-Webb, Steven Zarit and Carmen Berardo

The Predictive Value of Discrete Choice Experiments in Public Health: An Exploratory Application pp. 521-529

Benjamin Salampessy, Jorien Veldwijk, A. Jantine Schuit, Karolien den Brekel-Dijkstra, Rabin Neslo, G. Ardine de Wit and Mattijs Lambooij

Information and Decision-Making Needs Among People with Anxiety Disorders: Results of an Online Survey pp. 531-539

Sarah Liebherz, Martin Härter, Jörg Dirmaier and Lisa Tlach

Patient and Physician Perspectives on MSdialog, an Electronic PRO Diary in Multiple Sclerosis pp. 541-550

Peter Greiner, Anna Sawka and Emma Imison

The Impact of Chronic Urticaria from the Patient’s Perspective: A Survey in Five European Countries pp. 551-558

Maria-Magdalena Balp, Jeffrey Vietri, Haijun Tian and Gina Isherwood

Validity of a New Patient Engagement Measure: The Altarum Consumer Engagement (ACE) Measure™ pp. 559-568

Christopher Duke, Wendy Lynch, Brad Smith and Julie Winstanley

Erratum to: Validity of a New Patient Engagement Measure: The Altarum Consumer Engagement (ACE) Measure™ pp. 569-569

Christopher Duke, Wendy Lynch, Brad Smith and Julie Winstanley

Erratum to: Capturing Patient-Reported Outcome (PRO) Data Electronically: The Past, Present, and Promise of ePRO Measurement in Clinical Trials pp. 571-571

Stephen Coons, Sonya Eremenco, J. Lundy, Paul O’Donohoe, Hannah O’Gorman and William Malizia

Volume 8, issue 5, 2015

Sample Size Requirements for Discrete-Choice Experiments in Healthcare: a Practical Guide pp. 373-384

Esther Bekker-Grob, Bas Donkers, Marcel Jonker and Elly Stolk

Understanding Patient Preferences in Medication Nonadherence: A Review of Stated Preference Data pp. 385-395

Tracey-Lea Laba, Beverley Essue, Merel Kimman and Stephen Jan

Computer-Based Clinical Decision Support Systems and Patient-Reported Outcomes: A Systematic Review pp. 397-409

David Blum, Sunil Raj, Rolf Oberholzer, Ingrid Riphagen, Florian Strasser and Stein Kaasa

Consumers and Carers Versus Pharmacy Staff: Do Their Priorities for Australian Pharmacy Services Align? pp. 411-422

Sara McMillan, Fiona Kelly, Adem Sav, Elizabeth Kendall, Michelle King, Jennifer Whitty and Amanda Wheeler

Using Best–Worst Scaling to Measure Caregiver Preferences for Managing their Child’s ADHD: A Pilot Study pp. 423-431

Susan dosReis, Xinyi Ng, Emily Frosch, Gloria Reeves, Charles Cunningham and John Bridges

Qualitative Research on Fatigue Associated with Depression: Content Validity of the Fatigue Associated with Depression Questionnaire (FAsD-V2) pp. 433-443

Louis Matza, Lindsey Murray, Glenn Phillips, Thomas Konechnik, Ellen Dennehy, Elizabeth Bush and Dennis Revicki

Patient-Reported Symptoms over 48 Weeks in a Randomized, Open-Label, Phase 3b Non-inferiority Trial of Adults with HIV Switching to Coformulated Elvitegravir, Cobicistat, Emtricitabine, and Tenofovir DF Versus Continuation of Ritonavir-Boosted Protease Inhibitor with Emtricitabine and Tenofovir DF pp. 445-454

Joseph Gathe, Jose Arribas, Jan Lunzen, Will Garner, Rebecca Speck, Randall Bender, Sanatan Shreay and Thai Nguyen

Measuring the Preferences of Homeless Women for Cervical Cancer Screening Interventions: Development of a Best–Worst Scaling Survey pp. 455-467

Eve Wittenberg, Monica Bharel, Adrianna Saada, Emely Santiago, John Bridges and Linda Weinreb

Volume 8, issue 4, 2015

Patient-Centered Care and Patient-Reported Measures: Let’s Look Before We Leap pp. 293-299

Daniel Miller, Carolyn Steele Gray, Kerry Kuluski and Cheryl Cott

Capturing Patient-Reported Outcome (PRO) Data Electronically: The Past, Present, and Promise of ePRO Measurement in Clinical Trials pp. 301-309

Stephen Coons, Sonya Eremenco, J. Lundy, Paul O’Donohoe, Hannah O’Gorman and William Malizia

Self Management and Telehealth: Lessons Learnt from the Evaluation of a Dorset Telehealth Program pp. 311-316

Carol Bond and Louise Worswick

Assessment of a Stool Symptom Screener and Understanding the Opioid-Induced Constipation Symptom Experience pp. 317-327

Karin Coyne, Brooke Currie, William Holmes and Joseph Crawley

Positive Outcomes of Varicose Vein Surgery: The Patient Perspective pp. 329-337

Wei-Han Cheng, Haridarshan Patel, Wan-Ju Lee, Fang-Ju Lin and A. Pickard

Burden of Illness of Diabetic Peripheral Neuropathic Pain: A Qualitative Study pp. 339-348

Meryl Brod, Betsy Pohlman, Steven Blum, Abhilasha Ramasamy and Robyn Carson

Developing and Initiating Validation of a Model Opioid Patient-Prescriber Agreement as a Tool for Patient-Centered Pain Treatment pp. 349-358

Mary Ghods, Ian Schmid, Carol Pamer, Brian Lappin and Dale Slavin

Patient-Reported Symptoms Over 48 Weeks in a Randomized, Open-Label, Phase IIIb Non-Inferiority Trial of Adults with HIV Switching to Co-Formulated Elvitegravir, Cobicistat, Emtricitabine, and Tenofovir DF versus Continuation of Non-Nucleoside Reverse Transcriptase Inhibitor with Emtricitabine and Tenofovir DF pp. 359-371

Anthony Mills, Will Garner, Anton Pozniak, Juan Berenguer, Rebecca Speck, Randall Bender and Thai Nguyen

Volume 8, issue 3, 2015

Walking in the Shoes of Patients, Not Just in Their Genes: A Patient-Centered Approach to Genomic Medicine pp. 239-245

Neeraj Arora, Bradford Hesse and Steven Clauser

Improving the Validity of Stated-Preference Data in Health Research: The Potential of the Time-to-Think Approach pp. 247-255

Semra Ozdemir

Patient-Reported Outcomes After a Switch to a Single-Tablet Regimen of Rilpivirine, Emtricitabine, and Tenofovir DF in HIV-1-Positive, Virologically Suppressed Individuals: Additional Findings From a Randomized, Open-Label, 48-Week Trial pp. 257-267

Jason Brunetta, Santiago Moreno Guillén, Andrea Antinori, Patrick Yeni, Barbara Wade, Margaret Johnson, Peter Shalit, Ramin Ebrahimi, Bethsheba Johnson, Ivan Walker and Shampa De-Oertel

Unmet Needs Associated with Attention-Deficit/Hyperactivity Disorder in Eight European Countries as Reported by Caregivers and Adolescents: Results from Qualitative Research pp. 269-281

Vanja Sikirica, Emuella Flood, C. Dietrich, Javier Quintero, Val Harpin, Paul Hodgkins, Klaus Skrodzki, Kathleen Beusterien and M. Erder

Patient Perspectives and Experience with Dalfampridine Treatment in Multiple Sclerosis-Related Walking Impairment: The Step Together Program pp. 283-291

Heidi Crayton, Matthew Sidovar, Stanley Wulf and Amy Guo

Volume 8, issue 2, 2015

The Development of Capability Measures in Health Economics: Opportunities, Challenges and Progress pp. 119-126

Joanna Coast, Philip Kinghorn and Paul Mitchell

Involvement of Patients with Lung and Gynecological Cancer and Their Relatives in Psychosocial Cancer Rehabilitation: A Narrative Review pp. 127-143

Bente Hoeck, Loni Ledderer and Helle Hansen

Intravenous versus Subcutaneous Drug Administration. Which Do Patients Prefer? A Systematic Review pp. 145-153

Kelly Stoner, Helena Harder, Lesley Fallowfield and Valerie Jenkins

Constant-Sum Paired Comparisons for Eliciting Stated Preferences: A Tutorial pp. 155-163

Chris Skedgel and Dean Regier

Test–Retest Reliability of an Interactive Voice Response (IVR) Version of the EORTC QLQ-C30 pp. 165-170

J. Lundy, Stephen Coons and Neil Aaronson

Use of a Web-Based Survey to Facilitate Shared Decision Making for Patients Eligible for Cancer Screening pp. 171-177

Charles Brackett and Stephen Kearing

Effect of Internet on Chinese Patients Undergoing Elective Laparoscopic Cholecystectomy pp. 179-185

Xiequn Xu, Tao Hong, Binglu Li and Wei Liu

The Association between Patient-Centered Attributes of Care and Patient Satisfaction pp. 187-197

Hyojung Tak, Gregory Ruhnke and Ya-Chen Shih

Technology-Based Patient Consultations: Research Findings from Haematology Patients in Regional, Rural and Remote Queensland pp. 199-206

Pam McGrath

Patient-reported Outcomes for Multicentric Castleman’s Disease in a Randomized, Placebo-controlled Study of Siltuximab pp. 207-216

Frits Rhee, Margaret Rothman, Kai Ho, Sarah Fleming, Raymond Wong, Alexander Fosså, Angela Dispenzieri, James Cavet, Nikhil Munshi, Jessica Vermeulen and Corey Casper

Preference Elicitation Tool for Abnormal Uterine Bleeding Treatment: A Randomized Controlled Trial pp. 217-227

Lisa Hess, Abigail Litwiller, John Byron, John Stutsman, Kelly Kasper and Lee Learman

Investigating Patient Perspectives on Medical Returns and Buying Medicines Online in Two Communities in Melbourne, Australia: Results from a Qualitative Study pp. 229-238

Bianca Brijnath, Josefine Antoniades and Jon Adams