The Patient: Patient-Centered Outcomes Research

2008 - 2025

Current editor(s): Christopher I. Carswell

From:
Springer
International Academy of Health Preference Research
Bibliographic data for series maintained by Sonal Shukla () and Springer Nature Abstracting and Indexing ().

Access Statistics for this journal.
Is something missing from the series or not right? See the RePEc data check for the archive and series.

Volume 7, issue 4, 2014

Measuring the Symptoms of Pediatric Constipation and Irritable Bowel Syndrome with Constipation: Expert Commentary and Literature Review pp. 343-364

Robert Arbuckle, Robyn Carson, Linda Abetz-Webb, Jeffrey Hyams, Carlo Lorenzo, Barbara Lewis, Elizabeth Gargon, Caroline Kurtz, Steven Shiff and Jeffrey Johnston

A Systematic Review of Stated Preference Studies Reporting Public Preferences for Healthcare Priority Setting pp. 365-386

Jennifer Whitty, Emily Lancsar, Kylie Rixon, Xanthe Golenko and Julie Ratcliffe

A Systematic Review of the Impact of Patient and Public Involvement on Service Users, Researchers and Communities pp. 387-395

Jo Brett, Sophie Staniszewska, Carole Mockford, Sandra Herron-Marx, John Hughes, Colin Tysall and Rashida Suleman

Improving Communication in the Primary Care Setting: Perspectives of Patients with Speech Disabilities pp. 397-401

Megan Morris, Kathryn Yorkston and Marla Clayman

The Incontinence Impact Questionnaire-7 (IIQ-7) Can Be Applicable to Chinese Males and Females with Lower Urinary Tract Symptoms pp. 403-411

Edmond Choi, Cindy Lam and Weng-Yee Chin

Evaluation of Patient Preference and Willingness to Pay for Attributes of Maintenance Medication for Chronic Obstructive Pulmonary Disease (COPD) pp. 413-426

Ariane Kawata, Leah Kleinman, Gale Harding and Sulabha Ramachandran

Characteristics and Experiences of Patients with Localized Prostate Cancer Who Left an Active Surveillance Program pp. 427-436

Zackary Berger, Jonathan Yeh, H. Carter and Craig Pollack

Barriers to Initiating Insulin in Type 2 Diabetes Patients: Development of a New Patient Education Tool to Address Myths, Misconceptions and Clinical Realities pp. 437-450

Meryl Brod, Suzanne Alolga and Luigi Meneghini

Volume 7, issue 3, 2014

Time to Embrace a New Patient-Centered Care Rallying Cry: “Why Not?” pp. 231-233

Susan Frampton and Sara Guastello

Measuring Patient Experience: Concepts and Methods pp. 235-241

Faraz Ahmed, Jenni Burt and Martin Roland

Making Decisions About Implantable Cardioverter-Defibrillators from Implantation to End of Life: An Integrative Review of Patients’ Perspectives pp. 243-260

Krystina Lewis, Dawn Stacey and Dan Matlock

Involving Patients in a Multidisciplinary European Consensus Process and in the Development of a ‘Patient Summary of the Consensus Document for Colon and Rectal Cancer Care’ pp. 261-270

Petra Boelens, Claire Taylor, Geoffrey Henning, Perla Marang- van de Mheen, Eloy Espin, Theo Wiggers, Jola Gore-Booth, Barbara Moss, Vincenzo Valentini and Cornelis Velde

Assessing Stated Preferences for Colorectal Cancer Screening: A Critical Systematic Review of Discrete Choice Experiments pp. 271-282

S. Wortley, G. Wong, A. Kieu and K. Howard

The Patient Perspective of Diabetes Care: A Systematic Review of Stated Preference Research pp. 283-300

Lill-Brith Arx and Trine Kjær

Examining Patients’ Perceptions of Care to Identify Opportunities for Quality Improvement in Psychiatric Inpatient Hospitals pp. 301-312

Glorimar Ortiz

New Insight into the Role of Patients During Medical Appointments: A Synthesis of Three Qualitative Studies pp. 313-318

Ludmila Marcinowicz, Teresa Pawlikowska, Jerzy Konstantynowicz and Slawomir Chlabicz

Development and Validation of the AFSymp™: An Atrial Fibrillation-Specific Measure of Patient-Reported Symptoms pp. 319-327

Jennie Medin, Rob Arbuckle, Linda Abetz, Katarina Halling, Karoly Kulich, Nils Edvardsson and Karin Coyne

Does Diabetes Have an Impact on Health-State Utility? A Study of Asians in Singapore pp. 329-337

P. Wang, E. Tai, J. Thumboo, Hubertus Vrijhoef and Nan Luo

Volume 7, issue 2, 2014

The Potential of Crowdsourcing to Improve Patient-Centered Care pp. 123-127

Michael Weiner

Group Decision Making with the Analytic Hierarchy Process in Benefit-Risk Assessment: A Tutorial pp. 129-140

J. Hummel, John Bridges and Maarten IJzerman

Sourcing Quality-of-Life Weights Obtained from Previous Studies: Theory and Reality in Korea pp. 141-150

SeungJin Bae, Eun Bae and Sang Lim

Risk as an Attribute in Discrete Choice Experiments: A Systematic Review of the Literature pp. 151-170

Mark Harrison, Dan Rigby, Caroline Vass, Terry Flynn, Jordan Louviere and Katherine Payne

Linguistic Validation into 20 Languages and Content Validity of the Rheumatoid Arthritis-Specific Work Productivity and Activity Impairment Questionnaire pp. 171-176

Jérémy Lambert, Brian Hansen, Benoit Arnould, Géraldine Grataloup, Isabelle Guillemin, Lise Højbjerre, Martin Strandberg-Larsen and Margaret Reilly

Patient Perceptions of Generic Medicines: A Mixed-Methods Study pp. 177-185

Suzanne Dunne, Bill Shannon, Colum Dunne and Walter Cullen

Using Photovoice to Explore Patient Perceptions of Patient-Centered Care in the Veterans Affairs Health Care System pp. 187-195

Salva Balbale, Megan Morris and Sherri LaVela

Association Between Glycated Hemoglobin and Health Utility for Type 1 Diabetes pp. 197-205

R. McQueen, Samuel Ellis, David Maahs, Heather Anderson, Kavita Nair, Anne Libby and Jonathan Campbell

An Environmental Scan of Advance Care Planning Decision Aids for Patients Undergoing Major Surgery: A Study Protocol pp. 207-217

Rebecca Aslakson, Anne Schuster, Judith Miller, Matthew Weiss, Angelo Volandes and John Bridges

Outcome of Supportive Talks in a Hospital Setting: Insights from Cancer Patients and Their Relatives pp. 219-229

Loni Ledderer, Karen Cour and Helle Hansen

Volume 7, issue 1, 2014

Aligning Research and Practice: Implications of Patient-Centered Care for Placebo Effects pp. 1-3

Andrew Geers, Jason Rose and Jill Brown

Segmenting Patients and Physicians Using Preferences from Discrete Choice Experiments pp. 5-21

Ken Deal

An Introduction to Item Response Theory for Patient-Reported Outcome Measurement pp. 23-35

Tam Nguyen, Hae-Ra Han, Miyong Kim and Kitty Chan

Hostile Sexist Male Patients and Female Doctors: A Challenging Encounter pp. 37-45

Christina Klöckner Cronauer and Marianne Schmid Mast

Patient Perspectives of Dabigatran: Analysis of Online Discussion Forums pp. 47-54

Mary Vaughan Sarrazin, Peter Cram, Alexandur Mazur, Melissa Ward and Heather Reisinger

Walking Speed and Health‐Related Quality of Life in Multiple Sclerosis pp. 55-61

Christine Kohn, William Baker, Matthew Sidovar and Craig Coleman

Insulin Administration and the Impacts of Forgetting a Dose pp. 63-71

Meryl Brod, Betsy Pohlman and Jens Kongsø

Quality of Life in Organ Transplant Recipients Participating in an Online Transplant Community pp. 73-84

Paul Wicks, Katherine Sulham and Ari Gnanasakthy

Validity and Reliability of the Assessment of Quality of Life (AQoL)-8D Multi-Attribute Utility Instrument pp. 85-96

Jeff Richardson, Angelo Iezzi, Munir Khan and Aimee Maxwell

Patients’ Experience and Perception of Hospital-Treated Clostridium difficile Infections: a Qualitative Study pp. 97-105

Isabelle Guillemin, Alexia Marrel, Jérémy Lambert, Axelle Beriot-Mathiot, Carole Doucet, Odysseas Kazoglou, Christine Luxemburger, Camille Reygrobellet and Benoit Arnould

Painful Diabetic Peripheral Neuropathy: Results of a Survey Characterizing the Perspectives and Misperceptions of Patients and Healthcare Practitioners pp. 107-114

Alesia Sadosky, Joe Hopper and Bruce Parsons

Evaluation of Patient Satisfaction with Diabetes Management Provided by Clinical Pharmacists in the Patient-Centered Medical Home pp. 115-121

M. Shawn McFarland, Juliet Wallace, Jessica Parra and Jennifer Baker

Volume 6, issue 4, 2013

Carer Preferences in Economic Evaluation and Healthcare Decision Making pp. 235-239

Hareth Al-Janabi, Nikki McCaffrey and Julie Ratcliffe

Assessing Patient Preferences for Treatment Options and Process of Care in Inflammatory Bowel Disease: A Critical Review of Quantitative Data pp. 241-255

Meenakshi Bewtra and F. Johnson

How Illness Affects Family Members: A Qualitative Interview Survey pp. 257-268

Eve Wittenberg, Adrianna Saada and Lisa Prosser

Alternatives to Seclusion and Restraint in Psychiatry and in Long-Term Care Facilities for the Elderly: Perspectives of Service Users and Family Members pp. 269-280

Marie-Pierre Gagnon, Marie Desmartis, Mylène Dipankui, Johanne Gagnon and Michèle St-Pierre

Trust and Safe Spaces: Mental Health Consumers’ and Carers’ Relationships with Community Pharmacy Staff pp. 281-289

Amary Mey, Kathy Knox, Fiona Kelly, Andrew Davey, Jane Fowler, Laetitia Hattingh, Jasmina Fejzic, Denise McConnell and Amanda Wheeler

Development of a Questionnaire to Assess the Impact of Chronic Low Back Pain for Use in Regulated Clinical Trials pp. 291-305

Jonathan Stokes, Christopher Evans, Farrah Pompilus, Alan Shields and Kent Summers

Night-Time Symptoms and Their Impact on Sleep in Patients with Gastroesophageal Reflux Disease Who Have a Partial Response to Proton Pump Inhibitors: A Qualitative Patient Interview Study pp. 307-314

Anna Rydén, Mona Martin, Katarina Halling and Anna Niklasson

Volume 6, issue 3, 2013

“Not Just Little Adults”: Qualitative Methods to Support the Development of Pediatric Patient-Reported Outcomes pp. 143-159

Rob Arbuckle and Linda Abetz-Webb

Patients’ Willingness-to-Pay for an Alzheimer’s Disease Medication in Canada pp. 161-168

Mark Oremus, Jean-Eric Tarride, Eleanor Pullenayegum, Natasha Clayton and Parminder Raina

Evaluating the Content of the Communication Items in the CAHPS ® Clinician and Group Survey and Supplemental Items with What High-Performing Physicians Say They Do pp. 169-177

Denise Quigley, Steven Martino, Julie Brown and Ron Hays

“If I Wasn’t This Robust”: Patients’ Expectations and Experiences at the Outcome Measures in Rheumatology Conference 2010 pp. 179-187

Maarten Wit, Marije Koelewijn- van Loon, Sarah Collins, Tineke Abma and John Kirwan

Evaluating the Utility of Existing Patient-Reported Outcome Scales in Novel Patient Populations with Pancreatic Cancer, Lung Cancer, and Myeloproliferative Neoplasms Using Medicare Current Beneficiary Survey Data pp. 189-200

Jasmina Ivanova, Daniel Mytelka, Mei Duh, Howard Birnbaum, Alice Cummings, Alexandra San Roman, Gregory Price and Ralph Swindle

Feasibility of a Psychosocial Rehabilitation Intervention to Enhance the Involvement of Relatives in Cancer Rehabilitation: Pilot Study for a Randomized Controlled Trial pp. 201-212

Loni Ledderer, Karen Cour, Ole Mogensen, Erik Jakobsen, René dePont Christensen, Jakob Kragstrup and Helle Hansen

Impact of Once-Daily Versus Twice-Daily Dosing Frequency on Adherence to Chronic Medications among Patients with Venous Thromboembolism pp. 213-224

François Laliberté, Brahim Bookhart, Winnie Nelson, Patrick Lefebvre, Jeff Schein, Jonathan Rondeau-Leclaire and Mei Duh

Demonstrating Measurement Equivalence of the Electronic and Paper Formats of the Urticaria Patient Daily Diary in Patients with Chronic Idiopathic Urticaria pp. 225-231

Emuella Flood, James Zazzali and Jennifer Devlen

Volume 6, issue 2, 2013

Systematic Review of the Psychometric Properties of the Questionnaire to Evaluate the Adherence to HIV Therapy (CEAT-VIH) pp. 61-73

Eduardo Remor

Ranking Sources of Hospital Quality Information for Orthopedic Surgery Patients: Consequences for the System of Managed Competition pp. 75-80

Romy Bes and Bernard van den Berg

The Patient Journey in Chronic Myeloid Leukemia Patients on Tyrosine Kinase Inhibitor Therapies: Qualitative Insights Using a Global Ethnographic Approach pp. 81-92

François Guilhot, John Coombs, Tomasz Szczudlo, Oleg Zernovak, Marc Paolantonio, Christina Bender, Nancy Macdonald and Ari Shapiro

Chronic Obstructive Pulmonary Disease (COPD) Patients’ Disease-Related Preferences pp. 93-101

Giovanni Pisa, Siegfried Freytag and Rainer Schandry

Mapping CushingQoL Scores onto SF-6D Utility Values in Patients with Cushing’s Syndrome pp. 103-111

Montse Roset, Xavier Badia, Anna Forsythe and Susan Webb

Psychometric Evaluation of the Cushing’s Quality-of-Life Questionnaire pp. 113-124

Lauren Nelson, Anna Forsythe, Lori McLeod, Sonia Pulgar, Mario Maldonado, Theresa Coles, Yanqiong Zhang, Susan Webb and Xavier Badia

Community-Acquired Pneumonia: Symptoms and Burden of Illness at Diagnosis among US Adults Aged 50 Years and Older pp. 125-134

Kathleen Wyrwich, Holly Yu, Reiko Sato, David Strutton and John Powers

Validation of the English Version of the Kidney Disease Quality of Life Questionnaire (KDQOL-36) in Haemodialysis Patients in Singapore pp. 135-141

Fan Yang, Vivian Wang, Veena Joshi, Titus Lau and Nan Luo

Volume 6, issue 1, 2013

Social Stigma in Diabetes pp. 1-10

Jasmin Schabert, Jessica Browne, Kylie Mosely and Jane Speight

Patient-Reported Outcome Measures for Chronic Obstructive Pulmonary Disease pp. 11-21

Deepa Jahagirdar, Thilo Kroll, Karen Ritchie and Sally Wyke

Physical, Social, and Psychological Consequences of Treatment for Hepatitis C pp. 23-34

M. Manos, Chanda Ho, Rosemary Murphy and Valentina Shvachko

Towards Personalizing Treatment for Depression pp. 35-43

Marsha Wittink, Knashawn Morales, Mark Cary, Joseph Gallo and Stephen Bartels

Modeling Organizational Justice Improvements in a Pediatric Health Service pp. 45-59

Charles Cunningham, Linda Kostrzewa, Heather Rimas, Yvonne Chen, Ken Deal, Susan Blatz, Alida Bowman, Don Buchanan, Randy Calvert and Barbara Jennings