Shared Decision Making in a Youth Mental Health Service Design and Research Project: Insights From the Pan-Canadian ACCESS Open Minds Network

Chloé Guinaudie, Chantelle Mireault, Jimmy Tan, Yvonne Pelling, Sara Jalali, Ashok Malla and Srividya N. Iyer ()
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Chloé Guinaudie: Douglas Mental Health University Institute
Chantelle Mireault: Douglas Mental Health University Institute
Jimmy Tan: Douglas Mental Health University Institute
Yvonne Pelling: Douglas Mental Health University Institute
Sara Jalali: Douglas Mental Health University Institute
Ashok Malla: Douglas Mental Health University Institute
Srividya N. Iyer: Douglas Mental Health University Institute

The Patient: Patient-Centered Outcomes Research, 2020, vol. 13, issue 6, No 4, 653-666

Abstract: Abstract Shared decision making (SDM) is the process by which health care providers and patients collaborate to make health care decisions. This collaboration leads to informed decision making and improved outcomes. However, research on SDM specific to the field of youth mental health is scarce. ACCESS Open Minds (ACCESS OM) is a youth mental health research and evaluation project that implemented and evaluated SDM practices within its various activities and operations. The ACCESS OM network spans a diversity of youth mental health settings across Canada, and includes various stakeholders such as youth, family members and carers, clinicians, researchers, and policy makers. The project values all types of knowledge (specifically, experiential, cultural, clinical, and scientific knowledge) as necessary to lead to better health research, care delivery, and outcomes for patients and their communities. Similarly, it acknowledges the lived experience of patients and, family and carers as expertise. Through the integration of SDM practices, ACCESS OM has formulated valuable insights that can be applied to other health problems and settings. This paper, written by youth and family council members, operational staff, and researchers from the project, will share challenges and solutions that arose in the integration of SDM practices within ACCESS OM’s knowledge translation strategy, governance structures, clinical contexts, and capacity-building initiatives. Video abstract Shared Decision Making in a Youth Mental Health Service Design and Research Project: Insights From the Pan-Canadian ACCESS Open Minds Network (MP4 234838 kb)

Date: 2020
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DOI: 10.1007/s40271-020-00444-5

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