Using Mind Mapping in Family Meetings to Support Shared Decision Making with Pediatric and Geriatric Patients

Matthew L. Russell, Anne H. Carr and Kathleen Kieran ()
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Matthew L. Russell: Massachusetts General Hospital
Anne H. Carr: Hebrew Senior Life
Kathleen Kieran: Seattle Children’s Hospital

The Patient: Patient-Centered Outcomes Research, 2020, vol. 13, issue 6, No 8, 709-717

Abstract: Abstract Introduction Divergent objectives and narratives among members of a healthcare team may lead to suffering, underscoring the need to align patient care with the patient’s self-identified priorities and goals. Shared decision making (SDM) with patients who may not be able to make healthcare decisions for themselves presents a unique challenge to healthcare providers, caregivers, and patients. Children and the elderly are two such groups where substituted decision making is often required. Family meetings, wherein stakeholders in a patient’s care are gathered, present opportunities to align expectations and clinical goals. There is a clear need for a technique exploring all facets of the patient’s story within the context of the biopsychosocial-spiritual model. We sought to promote narrative equity among stakeholders and maintain patient focus during family meetings. We describe the use of Mind Mapping in the family meeting to meet these objectives. Methods Using two clinical scenarios, one involving a geriatric patient and another involving a pediatric patient, we describe the stepwise development of Mind Maps and how their use informed discussions among stakeholders in the family meeting. Results Stakeholders found the Mind Maps easy to draw and helpful in eliciting their own priorities and preferences. Group exploration and refinement of the Mind Maps helped stakeholders to appreciate others’ sometimes divergent perspectives, to ensure that the patient’s voice was heard, and to ensure that care decisions were patient focused. Discussion Mind Mapping was easily performed in two clinical scenarios, allowing the patient, family, and medical team to explore the biopsychosocial-spiritual model extensively, to appreciate each stakeholder’s priorities, and to identify areas for further development. We have found that Mind Mapping helps define the ‘topography’ of relationships, prioritizes team discussions, finds shared interests in seemingly divergent objectives, and identifies which team member may best lead a discussion on a particular topic. Conclusion Mind Mapping may be a useful tool for family meetings, particularly for geriatric and pediatric patients with multiple stakeholders involved.

Date: 2020
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DOI: 10.1007/s40271-020-00447-2

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