Unlocking the Value of Literature in Health Co-Design: Transforming Patient Experience Publications into a Creative and Accessible Card Tool

Clare Villalba (), Anjali Jaiprakash (), Jared Donovan, Jonathan Roberts and Ross Crawford
Additional contact information
Clare Villalba: Queensland University of Technology
Anjali Jaiprakash: Queensland University of Technology
Jared Donovan: Queensland University of Technology
Jonathan Roberts: Queensland University of Technology
Ross Crawford: Queensland University of Technology

The Patient: Patient-Centered Outcomes Research, 2018, vol. 11, issue 6, No 8, 637-648

Abstract: Abstract Background A wealth of peer-reviewed data exists regarding people’s health experience, yet practical ways of using the data to understand patients’ experiences and to inform health co-design are needed. Objective This study aims to develop an applied and pragmatic method for using patient experience literature in co-design by transforming it into an accessible and creative co-design tool. Method A scoping literature review of the CINAHL, MEDLINE, PsycINFO and PubMed electronic databases was conducted from January 2011 through August 2016. Qualitative publications regarding the experience of living with diabetes in Australia were selected. The Results section of each paper was extracted and affinity analysis was applied to identify insights into the health experience. These insights were developed into a card tool for use in health co-design activities. Results Thirteen relevant papers were identified from the review, and affinity analysis of the Results sections of these papers lead to the identification of 85 insights, from ‘Shock of diagnosis’ (Insight 1), to ‘Delay seeking care’ (Insight 9), to ‘Assess the quality of care’ (Insight 28), to ‘Avoid or adapt habits’ (Insight 78). Each insight was developed into an individual card, which included a high-level theme, insight, quote and a link back to the literature, together making up the Health Experience Insight Cards, Living with Diabetes Edition. Conclusions This was the first study to develop a method for transforming existing patient experience literature into a creative tool for health improvement. The Health Experience Insight Cards collate the diverse experiences of over 300 people living with diabetes in Australia, from 13 studies. Health improvement teams can use the ‘Living with Diabetes Edition’ cards or they can follow this pragmatic method to create their own cards focused on other health experiences to facilitate person-focused health improvements.

Date: 2018
References: View complete reference list from CitEc
Citations:

Downloads: (external link)
http://link.springer.com/10.1007/s40271-018-0315-7 Abstract (text/html)
Access to the full text of the articles in this series is restricted.

Related works:
This item may be available elsewhere in EconPapers: Search for items with the same title.

Export reference: BibTeX RIS (EndNote, ProCite, RefMan) HTML/Text

Persistent link: https://EconPapers.repec.org/RePEc:spr:patien:v:11:y:2018:i:6:d:10.1007_s40271-018-0315-7

Ordering information: This journal article can be ordered from
http://www.springer.com/economics/journal/40271

DOI: 10.1007/s40271-018-0315-7

Access Statistics for this article

The Patient: Patient-Centered Outcomes Research is currently edited by Christopher I. Carswell

More articles in The Patient: Patient-Centered Outcomes Research from Springer, International Academy of Health Preference Research
Bibliographic data for series maintained by Sonal Shukla () and Springer Nature Abstracting and Indexing ().