Healthcare Experience and their Relationship with Demographic, Disease and Healthcare-Related Variables: A Cross-Sectional Survey of Patients with Chronic Diseases Using the IEXPAC Scale

Domingo Orozco-Beltrán, Javier Toro, María J. Galindo, Ignacio Marín-Jiménez, Francesc Casellas, María J. Fuster-RuizdeApodaca, María L. García-Vivar, Antonio Hormigo-Pozo, Mercedes Guilabert, Nuria Sánchez-Vega, Gonzalo Fernández and Luis Cea-Calvo ()
Additional contact information
Domingo Orozco-Beltrán: Miguel Hernandez University
Javier Toro: A Coruña University Hospital
María J. Galindo: Clinic University Hospital
Ignacio Marín-Jiménez: Gregorio Marañón University
Francesc Casellas: Hospital Universitari Vall d’Hebron
María J. Fuster-RuizdeApodaca: SEISIDA (Spanish AIDS Multidisciplinary Society)
María L. García-Vivar: Basurto University Hospital
Antonio Hormigo-Pozo: San Andres-Torcal Health Care Center
Mercedes Guilabert: Miguel Hernández University
Nuria Sánchez-Vega: Merck Sharp and Dohme Spain
Gonzalo Fernández: Merck Sharp and Dohme Spain
Luis Cea-Calvo: Merck Sharp and Dohme Spain

The Patient: Patient-Centered Outcomes Research, 2019, vol. 12, issue 3, No 4, 307-317

Abstract: Abstract Background Patient experience is acknowledged as a principal aspect of quality healthcare delivery, and it has implications with regard to outcomes. Objectives Our objective was to evaluate the healthcare experience of patients with chronic diseases to identify patient-perceived healthcare gaps and to assess the influence of demographic and healthcare-related variables on patient experiences. Methods A cross-sectional survey was delivered to adult patients with chronic diseases: diabetes mellitus (DM), human immunodeficiency virus (HIV) infection, inflammatory bowel disease (IBD) or rheumatic diseases. Patient experiences were assessed with the Instrument for Evaluation of the Experience of Chronic Patients (IEXPAC) questionnaire, with possible scores ranging from 0 (worst) to 10 (best experience). Results Of the 2474 patients handed the survey, 1618 returned it (response rate 65.4%). Patients identified gaps in healthcare related mainly to access to reliable information and services, interaction with other patients and continuity of healthcare after hospital discharge. The mean ± standard deviation (SD) IEXPAC score was 6.0 ± 1.9 and was higher for patients with HIV (6.6 ± 1.7) than for those with rheumatic disease (5.5 ± 2.0), IBD (5.9 ± 2.0) or DM (5.9 ± 1.9) (p

Date: 2019
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DOI: 10.1007/s40271-018-0345-1

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