Unexpected Outcomes of Measuring Decision Regret: Using a Breast Cancer Decision-Making Case Example

Kelly Oman (), Marie-Anne Durand, Glyn Elwyn, Renata West Yen, Christine Marx and Mary C. Politi
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Kelly Oman: Washington University in St. Louis
Marie-Anne Durand: Dartmouth College, The Dartmouth Institute for Health Policy and Clinical Practice
Glyn Elwyn: Dartmouth College, The Dartmouth Institute for Health Policy and Clinical Practice
Renata West Yen: Dartmouth College, The Dartmouth Institute for Health Policy and Clinical Practice
Christine Marx: Washington University in St. Louis
Mary C. Politi: Washington University in St. Louis

The Patient: Patient-Centered Outcomes Research, 2022, vol. 15, issue 2, No 2, 155 pages

Abstract: Abstract Shared decision making can help patients feel supported and empowered when deciding between healthcare options. Decision regret can be a meaningful measure of the quality of that encounter. However, in a patient-engaged research study examining shared decision making for breast cancer surgery, decision regret was a difficult construct to assess, and asking questions about decision regret caused the patient to experience that emotion upon reflection. In this article, we consider the complexity of decision regret, and discuss the difficulty of measuring that emotion through existing instruments. We call for clarity in definitions of decision regret and offer suggestions for developing a set of questions that can capture regret in a more meaningful way.

Date: 2022
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DOI: 10.1007/s40271-021-00543-x

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