A Standard Set of Value-Based Patient-Centered Outcomes and Measures of Overall Health in Adults
Jaheeda Gangannagaripalli,
Andrea Albagli,
Stacie N. Myers,
Sarah Whittaker,
Andria Joseph,
Anna Clarke,
Lucy Matkin,
Jordi Alonso,
Ira Byock,
Michael den Berg,
Carolyn Canfield,
John Chaplin,
Juan Dapueto,
Marcelo Pio Almedia Fleck,
Chris Sidey-Gibbons,
Jan Hazelzet,
Rachel Hess,
Kaisa Immonen,
Serena Joyner,
Catherine Katz,
Carolyn Kerrigan,
Cindy Lam,
Joanne Lunn,
Fiona McKenzie,
Alastair Roeves,
Caleb Stowell,
Timothy Switaj,
Melissa Tinsley,
Eyal Zimlichman and
Jose M. Valderas ()
Additional contact information
Jaheeda Gangannagaripalli: University of Exeter Medical School
Andrea Albagli: International Consortium for Health Outcomes Measurement
Stacie N. Myers: International Consortium for Health Outcomes Measurement
Sarah Whittaker: International Consortium for Health Outcomes Measurement
Andria Joseph: International Consortium for Health Outcomes Measurement
Anna Clarke: International Consortium for Health Outcomes Measurement
Lucy Matkin: International Consortium for Health Outcomes Measurement
Jordi Alonso: Pompeu Fabra University (UPF)
Michael den Berg: Organization for Economic Cooperation and Development (OECD)
Carolyn Canfield: The University of British Columbia
John Chaplin: Gothenburg University
Juan Dapueto: Universidad de la Republica
Marcelo Pio Almedia Fleck: Universidade Federal do Rio Grande do Sul
Chris Sidey-Gibbons: University of Texas MD Anderson Cancer Center
Jan Hazelzet: Erasmus University Medical Center
Rachel Hess: University of Utah
Kaisa Immonen: European Patients Forum (EPF)
Serena Joyner: Health Consumers NSW
Catherine Katz: Australian Commission for Safety and Quality in Health Care
Carolyn Kerrigan: The Dartmouth Institute
Cindy Lam: University of Hong Kong
Joanne Lunn: We Help Ourselves (WHOS)
Fiona McKenzie: He Tangata Consulting
Alastair Roeves: University Health Board
Timothy Switaj: US Army
Melissa Tinsley: Agency of Clinical Innovation
Eyal Zimlichman: Sheba Medical Centre
Jose M. Valderas: University of Exeter Medical School
The Patient: Patient-Centered Outcomes Research, 2022, vol. 15, issue 3, No 6, 351 pages
Abstract:
Abstract Background The definition of population-specific outcomes is an essential precondition for the implementation of value-based health care. We developed a minimum standard outcome set for overall adult health (OAH) to facilitate the implementation of value-based health care in tracking, comparing, and improving overall health care outcomes of adults across multiple conditions, which would be of particular relevance for primary care and public health populations. Methods The International Consortium for Health Outcomes Measurement (ICHOM) convened an international panel (patients, clinicians, and topic experts). Following the development of a conceptual framework, a modified Delphi method (supported by public consultations) was implemented to identify, in sequence, the relevant domains, the best instruments for measuring them, the timing of measurement, and the relevant adjustment variables. Findings Outcomes were identified in relation to overall health status and the domains of physical, mental, and social health. Three instruments covering these domains were identified: PROMIS Scale v1.2—Global Health (10 items), WHO Wellbeing Index (5 items), and the WHO Disability Assessment Schedule 2.0 (12 items). Case-mix variables included a range of sociodemographic and biometric measures. Yearly measurement was proposed for all outcomes and most case-mix variables. Interpretation The ICHOM OAH Standard Set has been developed through consensus-based methods based on predefined criteria following high standards for the identification and selection of high-quality measures The involvements of a wide range of stakeholders supports the acceptability of the set, which is readily available for use and feasibility testing in clinical settings.
Date: 2022
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DOI: 10.1007/s40271-021-00554-8
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