A New Framework for Co-Creating Telehealth for Cancer Care with the Patient Community

Bonnie Addario (), Violeta Astratinei (), Louise Binder (), Jan Geissler (), Marcia K. Horn (), Linda U. Krebs (), Bryan Lewis (), Kathy Oliver () and Andrew Spiegel ()
Additional contact information
Bonnie Addario: GO2 Foundation for Lung Cancer
Violeta Astratinei: Melanoma Patient Network Europe
Louise Binder: Save Your Skin Foundation
Jan Geissler: Patvocates
Marcia K. Horn: ICAN, International Cancer Advocacy Network
Linda U. Krebs: International Society of Nurses in Cancer Care
Bryan Lewis: KidneyCAN
Kathy Oliver: International Brain Tumour Alliance
Andrew Spiegel: Global Colon Cancer Association

The Patient: Patient-Centered Outcomes Research, 2023, vol. 16, issue 5, No 1, 415-423

Abstract: Abstract The increased use of telehealth in cancer care during the coronavirus disease 2019 pandemic has added to our knowledge and experience of the modality with benefits in terms of efficacy, cost, and patient and healthcare professional experience reported. However, telehealth has also been found not to be universally available to all patients with cancer, nor to be appropriate for every healthcare interaction; additionally, not all patients prefer it. Now that coronavirus disease restrictions have essentially ended and an opportunity to re-assess telehealth provision in cancer care presents, we offer a framework that aims to ensure that the needs and preferences of the patient community are included in the development of telehealth provision. Stakeholders in this process include patients, patient advocates, healthcare providers, healthcare services commissioners, managers, and policy makers. The framework outlines how patient advocates can work with other stakeholders as equal partners at all stages of telehealth service development. The patient advocate community has a unique understanding of the patient perspective as well as expertise in healthcare design and delivery. This enables advocates to contribute to shaping telehealth provision, from policy and guideline formulation to patient navigation. Appropriate resources, education and training may be needed for all stakeholders to support the development of an effective telehealth system. Together with other stakeholders, patient advocates can make an important contribution to optimizing appropriate patient-centred telehealth provision in cancer care.

Date: 2023
References: View complete reference list from CitEc
Citations:

Downloads: (external link)
http://link.springer.com/10.1007/s40271-023-00642-x Abstract (text/html)
Access to the full text of the articles in this series is restricted.

Related works:
This item may be available elsewhere in EconPapers: Search for items with the same title.

Export reference: BibTeX RIS (EndNote, ProCite, RefMan) HTML/Text

Persistent link: https://EconPapers.repec.org/RePEc:spr:patien:v:16:y:2023:i:5:d:10.1007_s40271-023-00642-x

Ordering information: This journal article can be ordered from
http://www.springer.com/economics/journal/40271

DOI: 10.1007/s40271-023-00642-x

Access Statistics for this article

The Patient: Patient-Centered Outcomes Research is currently edited by Christopher I. Carswell

More articles in The Patient: Patient-Centered Outcomes Research from Springer, International Academy of Health Preference Research
Bibliographic data for series maintained by Sonal Shukla () and Springer Nature Abstracting and Indexing ().