Quality of Life in Organ Transplant Recipients Participating in an Online Transplant Community

Paul Wicks (), Katherine Sulham and Ari Gnanasakthy

The Patient: Patient-Centered Outcomes Research, 2014, vol. 7, issue 1, 73-84

Abstract: Organ transplant patients are willing to report detailed health data through online communities across key domains—symptoms, treatment effects, and generic quality of life—that constitute the essential core of patient-reported outcomes. Patient-reported outcomes captured online have the potential to accelerate learning about patient experiences but suffer methodological challenges that must be overcome to maximize their utility. Copyright The Author(s) 2014

Date: 2014
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DOI: 10.1007/s40271-013-0033-0

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