Systematic Review of Conceptual, Age, Measurement and Valuation Considerations for Generic Multidimensional Childhood Patient-Reported Outcome Measures

Joseph Kwon (), Louise Freijser (), Elisabeth Huynh (), Martin Howell (), Gang Chen (), Kamran Khan (), Shahd Daher (), Nia Roberts (), Conrad Harrison (), Sarah Smith (), Nancy Devlin (), Kirsten Howard (), Emily Lancsar, Cate Bailey (), Jonathan Craig (), Kim Dalziel (), Alison Hayes (), Brendan Mulhern (), Germaine Wong (), Julie Ratcliffe () and Stavros Petrou ()
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Joseph Kwon: University of Sheffield
Louise Freijser: University of Melbourne
Elisabeth Huynh: Australian National University
Martin Howell: University of Sydney
Gang Chen: Monash University
Kamran Khan: University of Warwick
Shahd Daher: University of Oxford
Nia Roberts: University of Oxford
Conrad Harrison: University of Oxford
Sarah Smith: London School of Hygiene and Tropical Medicine
Kirsten Howard: University of Sydney
Cate Bailey: University of Melbourne
Jonathan Craig: Flinders University
Kim Dalziel: University of Melbourne
Alison Hayes: University of Sydney
Brendan Mulhern: University of Technology Sydney
Germaine Wong: University of Sydney
Julie Ratcliffe: Flinders University
Stavros Petrou: University of Oxford

PharmacoEconomics, 2022, vol. 40, issue 4, No 3, 379-431

Abstract: Abstract Background and Aims Patient-reported outcome measures (PROMs) for children (aged ≤ 18 years) present methodological challenges. PROMs can be categorised by their diverse underlying conceptual bases, including functional, disability and health (FDH) status; quality of life (QoL); and health-related quality of life (HRQoL). Some PROMs are designed to be accompanied by preference weights. PROMs should account for childhood developmental differences by incorporating age-appropriate health/QoL domains, guidance on respondent type(s) and design. This systematic review aims to identify generic multidimensional childhood PROMs and synthesise their characteristics by conceptual basis, target age, measurement considerations, and the preference-based value sets that accompany them. Methods The study protocol was registered in the Prospective Register of Systematic Reviews (CRD42021230833), and reporting followed Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. We conducted systematic database searches for generic multidimensional childhood PROMs covering the period 2012–2020, which we combined with published PROMs identified by an earlier systematic review that covered the period 1992–2011. A second systematic database search identified preference-based value sets for generic multidimensional PROMs. The PROMs were categorised by conceptual basis (FDH status, QoL and HRQoL) and by target age (namely infants and pre-schoolers aged

Date: 2022
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DOI: 10.1007/s40273-021-01128-0

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