Implementing specialist psychological support for caregivers in psychosis services: a preliminary report

Jane Smallwood, Suzanne Jolley, Jyotsna Makhijani, Sarah Grice, Emma O’Donoghue, Paula Bendon, Liz P. Greenaway and Juliana Onwumere

Psychosis, 2017, vol. 9, issue 2, 119-128

Abstract: Background: Research demonstrates the importance of supporting caregivers of people with psychosis, but routine implementation studies are lacking. We evaluate a newly-developed caregiver support service, offering individual and group psychoeducation, practical advice and emotional support, working alongside usual community mental health provision for people with established psychosis.Aims: We aimed to provide analysis of preliminary data on the rate and suitability of referrals, engagement, and helpfulness, to inform future larger-scale implementation and evaluation.Method: We conducted a mixed-methods audit during the service’s first ten operational months (01 September 2013–30 June 2014). Caregivers gave qualitative feedback and completed measures of the impact of caregiving pre- and post-intervention.Results: Referrals totalled 103 (10/month), with 45 (44%) initial meetings; and 28 (27%) individual interventions (≥1 sessions, mode = 3). Caregivers were predominantly black British/African/Caribbean parents. Self-reported needs and caregiving experiences were consistent with the literature. Two-thirds of caregivers were clinically distressed. Qualitative feedback showed that caregivers valued the service. Outcomes suggest improved experiences of caregiving following intervention.Conclusions: Findings highlight the potential benefits and challenges of routinely providing psychologically-focused caregiver support. Limitations and future plans are discussed.

Date: 2017
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DOI: 10.1080/17522439.2016.1259647

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