Community needs, concerns, and perceptions about health research: Findings from the clinical and translational science award sentinel network

L.B. Cottler, D.J. McCloskey, S. Aguilar-Gaxiola, N.M. Bennett, H. Strelnick, M. Dwyer-White, D.E. Collyar, S. Ajinkya, S.D. Seifer, C.C. O'Leary, C.W. Striley and B. Evanoff

American Journal of Public Health, 2013, vol. 103, issue 9, 1685-1692

Abstract: Objectives. We used results generated from the first study of the National Institutes of Health Sentinel Network to understand health concerns and perceptions of research among underrepresented groups such as women, the elderly, racial/ethnic groups, and rural populations. Methods. Investigators at 5 Sentinel Network sites and 2 community-focused national organizations developed a common assessment tool used by community health workers to assess research perceptions, health concerns, and conditions. Results. Among 5979 individuals assessed, the top 5 health concerns were hypertension, diabetes, cancer, weight, and heart problems; hypertension was the most common self-reported condition. Levels of interest in research participation ranged from 70.1% among those in the "other" racial/ethnic category to 91.0% among African Americans. Overall, African Americans were more likely than members of other racial/ethnic groups to be interested in studies requiring blood samples (82.6%), genetic samples (76.9%), or medical records (77.2%); staying overnight in a hospital (70.5%); and use of medical equipment (75.4%). Conclusions. Top health concerns were consistent across geographic areas. African Americans reported more willingness to participate in research even if it required blood samples or genetic testing.

Keywords: adult; article; attitude to health; consumer; female; health auxiliary; human; male; medical research; middle aged; needs assessment; psychological aspect; sentinel surveillance; statistics; translational research; United States; vulnerable population, Adult; Attitude to Health; Biomedical Research; Community Health Workers; Consumer Participation; Female; Humans; Male; Middle Aged; Needs Assessment; Sentinel Surveillance; Translational Medical Research; United States; Vulnerable Populations; Young Adult (search for similar items in EconPapers)
Date: 2013
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Citations: View citations in EconPapers (4)

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Persistent link: https://EconPapers.repec.org/RePEc:aph:ajpbhl:10.2105/ajph.2012.300941_8

DOI: 10.2105/AJPH.2012.300941

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