User Involvement in the Design and Development of Patient Decision Aids and Other Personal Health Tools: A Systematic Review

Gratianne Vaisson, Thierry Provencher, Michèle Dugas, Marie-Ève Trottier, Selma Chipenda Dansokho, Heather Colquhoun, Angela Fagerlin, Anik M. C. Giguere, Hina Hakim, Lynne Haslett, Aubri S. Hoffman, Noah M. Ivers, Anne-Sophie Julien, France Légaré, Jean-Sébastien Renaud, Dawn Stacey, Robert J. Volk and Holly O. Witteman
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Gratianne Vaisson: Universite Laval Faculte de Medicine, Quebec City, QC, Canada
Thierry Provencher: Laval University Faculty of Medicine, Quebec, QC, Canada
Michèle Dugas: Universite Laval Faculte de Medicine, Quebec City, QC, Canada
Marie-Ève Trottier: Universite Laval Faculte de Medicine, Quebec City, QC, Canada
Selma Chipenda Dansokho: Laval University Faculty of Medicine, Quebec, QC, Canada
Heather Colquhoun: University of Toronto Faculty of Medicine, Toronto, ON, Canada
Angela Fagerlin: University of Utah School of Medicine, Salt Lake City, UT, USA
Anik M. C. Giguere: McMaster University Faculty of Health Sciences, Quebec, QC, Canada
Hina Hakim: Universite Laval Faculte de Medicine, Quebec City, QC, Canada
Lynne Haslett: East End Community Health Centre, Toronto, ON, Canada
Aubri S. Hoffman: The University of Texas MD Anderson Cancer Center, Houston, TX, USA
Noah M. Ivers: Women’s College Hospital, Toronto, ON, Canada
Anne-Sophie Julien: Universite Laval Faculte des Sciences et de Genie, Quebec, QC, Canada
France Légaré: Universite Laval Faculte de Medicine, Quebec City, QC, Canada
Jean-Sébastien Renaud: Universite Laval Faculte de Medicine, Quebec City, QC, Canada
Dawn Stacey: University of Ottawa Faculty of Health Sciences, Ottawa, ON, Canada
Robert J. Volk: The University of Texas MD Anderson Cancer Center, Houston, TX, USA
Holly O. Witteman: Universite Laval Faculte de Medicine, Quebec City, QC, Canada

Medical Decision Making, 2021, vol. 41, issue 3, 261-274

Abstract: Background When designing and developing patient decision aids, guidelines recommend involving patients and stakeholders. There are myriad ways to do this. We aimed to describe how such involvement occurs by synthesizing reports of patient decision aid design and development within a user-centered design framework and to provide context by synthesizing reports of user-centered design applied to other personal health tools. Methods We included articles describing at least one development step of 1) a patient decision aid, 2) user- or human-centered design of another personal health tool, or 3) evaluation of these. We organized data within a user-centered design framework comprising 3 elements in iterative cycles: understanding users, developing/refining prototype, and observing users. Results We included 607 articles describing 325 patient decision aid projects and 65 other personal health tool projects. Fifty percent of patient decision aid projects reported involving users in at least 1 step for understanding users, 35% in at least 1 step for developing/refining the prototype, and 84% in at least 1 step for observing users’ interaction with the prototype. In comparison, other personal health tool projects reported 91%, 49%, and 92%, respectively. A total of 74% of patient decision aid projects and 92% of other personal health tool projects reported iterative processes, both with a median of 3 iterative cycles. Preliminary evaluations such as usability or feasibility testing were reported in 66% of patient decision aid projects and 89% of other personal health tool projects. Conclusions By synthesizing design and development practices, we offer evidence-based portraits of user involvement. Those wishing to further align patient decision aid design and development with user-centered design methods could involve users earlier, design and develop iteratively, and report processes in greater detail.

Keywords: decision making; decision support techniques; health services research; humans; patient-centered care; patient education; patient participation (search for similar items in EconPapers)
Date: 2021
References: View complete reference list from CitEc
Citations: View citations in EconPapers (2)

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Persistent link: https://EconPapers.repec.org/RePEc:sae:medema:v:41:y:2021:i:3:p:261-274

DOI: 10.1177/0272989X20984134

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