Appropriateness of the EQ-HWB for Use in Residential Aged Care: A Proxy Perspective

Lidia Engel (), Cate Bailey, Ekaterina Bogatyreva, Frances Batchelor, Nancy Devlin, Briony Dow, Andrew S. Gilbert, Brendan Mulhern, Rosalie Viney and Tessa Peasgood
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Lidia Engel: Monash University
Cate Bailey: University of Melbourne
Ekaterina Bogatyreva: Deakin University
Frances Batchelor: National Ageing Research Institute
Nancy Devlin: University of Melbourne
Briony Dow: National Ageing Research Institute
Andrew S. Gilbert: National Ageing Research Institute
Brendan Mulhern: University of Technology Sydney
Rosalie Viney: University of Technology Sydney
Tessa Peasgood: University of Melbourne

The Patient: Patient-Centered Outcomes Research, 2024, vol. 17, issue 6, No 6, 673-683

Abstract: Abstract Background and Objective The EQ Health and Wellbeing (EQ-HWB) is a new generic quality-of-life measure for use in evaluating interventions in health, public health and social care. This study aimed to explore proxies’ views regarding the appropriateness of the EQ-HWB for measuring residents’ quality of life living in residential aged care facilities. Methods Qualitative think-aloud and semi-structured interviews were conducted with family members and aged care staff across three facilities in Melbourne, Australia. Proxies completed the 25-item EQ-HWB proxy version 2 (i.e. proxy-person perspective) whilst talking through the reasons for choosing their response. All interviews were audio-recorded and transcribed verbatim. A thematic analysis was used for data analysis. Results The sample included 29 proxies; nine family members and 20 aged care staff. The first theme summarised proxies’ ability to proxy report residents’ health and well-being using the EQ-HWB, which highlighted challenges with adherence to the proxy perspective, proxies’ limited knowledge about residents, disagreement with residents’ self-evaluation and use of heuristics. The second theme reflected feedback on the suitability of the EQ-HWB for use in residential aged care. Although proxies perceived that the EQ-HWB covered important domains, there were concerns about ambiguity, inappropriate examples, double-barrelled items and perceived repetition. Suggestions were made to improve the response options, comprehensiveness, recall period, layout and instructions of the questionnaire. Conclusions While the EQ-HWB captures domains relevant to residential aged care, modifications to item wording and examples are necessary to improve its appropriateness. Use of the proxy-person perspective revealed some challenges that require further consideration.

Date: 2024
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DOI: 10.1007/s40271-024-00715-5

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