The Dynamic Context and Multiple Challenges of Data Sharing

Marcelo Corrales Compagnucci, Mark Fenwick, Timo Minssen and Mateo Aboy
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Marcelo Corrales Compagnucci: University of Copenhagen
Mark Fenwick: Kyushu University
Timo Minssen: University of Copenhagen
Mateo Aboy: University of Cambridge

A chapter in The Law and Ethics of Data Sharing in Health Sciences, 2024, pp 1-12 from Springer

Abstract: Abstract This chapter outlines the dynamic context and multiple challenges of data sharing in the contemporary data ecosystem, specifically as it relates to healthcare. Here, we define “data sharing” as the practice of sharing health-related data between a number of data controllers and processors. Data collected in this manner can come from the provision of health, clinical trials, observational studies, public health surveillance programs, and other health dataHealth data collection methods. Several justifications for such sharing are introduced. Our main contention is that the regulatory environment today is an increasingly complex and rapidly evolving combination of norms and principles. To navigate this environment successfully requires careful analysis and judgment from all stakeholders across diverse fields of technology and the law. The purpose of this volume, therefore, is to offer a series of case studies that integrate theoretical and practical perspectives and illustrate how to effectively navigate this complex and rapidly evolving space.

Keywords: Data sharing; Data protection; Clinical trials; Health science; Innovation incentives; Open data (search for similar items in EconPapers)
Date: 2024
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Persistent link: https://EconPapers.repec.org/RePEc:spr:perchp:978-981-99-6540-3_1

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DOI: 10.1007/978-981-99-6540-3_1

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