Operationalizing the Use of Existing Data in Support of Biomedical Research and Innovation: An Inclusive and Sustainable Approach

Helen Yu
Additional contact information
Helen Yu: Swansea University

A chapter in The Law and Ethics of Data Sharing in Health Sciences, 2024, pp 69-84 from Springer

Abstract: Abstract Advancements in science and technology has created an expectation and demand on research and innovationInnovation to address some of the greatest societal challenges, particularly in the health and biomedical fields. There is an inherent promise associated with the potential of breakthrough technologies, particularly when combined with quality health-related data, to deliver significant improved health outcomes globally. However, science and innovation alone are not sufficient to achieve societal transformation towards global health. There is an observed reluctance to operationalize the use of existing data, mainly due to privacy and security concerns, as well as a palpable apprehension around how, for what purpose, and by whom data will be used. Research and innovationInnovation need to be supported by behavior and attitude change in order to foster inclusive participation and effective societal uptake of the resulting solutions. This chapter explores how the principles of Responsible Research and InnovationResponsible Research and Innovation (RRI) can be applied to provide a legally supported, inclusive, and sustainable approach to operationalizing the use of existing data in support of health-related innovations. By incorporating a deliberative and responsive process to citizen scienceCitizen science practices, the root causes underlying this observed reluctance can be identified and addressed. The overall aim is to gain a fundamental understanding of the real and perceived barriers to utilizing data for research and innovationInnovation purposes, which can then be used to proffer solutions to create a responsive and inclusive culture to sustainably support the ongoing responsible use of data.

Keywords: Responsible research and innovation; use of health dataXE, Health data; privacy and security concerns; citizen science; developing trust and accountabilityXE, Accountability; legally supported frameworks to drive innovationXE, Innovation (search for similar items in EconPapers)
Date: 2024
References: Add references at CitEc
Citations:

There are no downloads for this item, see the EconPapers FAQ for hints about obtaining it.

Related works:
This item may be available elsewhere in EconPapers: Search for items with the same title.

Export reference: BibTeX RIS (EndNote, ProCite, RefMan) HTML/Text

Persistent link: https://EconPapers.repec.org/RePEc:spr:perchp:978-981-99-6540-3_5

Ordering information: This item can be ordered from
http://www.springer.com/9789819965403

DOI: 10.1007/978-981-99-6540-3_5

Access Statistics for this chapter

More chapters in Perspectives in Law, Business and Innovation from Springer
Bibliographic data for series maintained by Sonal Shukla () and Springer Nature Abstracting and Indexing ().